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Coping with and factors impacting upon the experience of lung cancer in patients and primary carers

There is a paucity of research exploring patients' and their informal carers' experience of coping with and factors impacting on the lung cancer experience. This study aims to explore how patients and their informal carers cope with a diagnosis of lung cancer and describe the key factors that mediate distress in this population in order that they may be better supported in the future.

Thu, 07/20/2017 - 15:21

Urban-rural comparisons of outcomes for informal carers of elderly people in the community: a systematic review

As the age of the general population increases, the number of elderly people who need care is increasing. It has been suggested that rural carers may be disadvantaged compared to urban carers, but it is not clear what affect geographic location has on carers. This paper presents a systematic review of the literature on urban–rural comparisons on various outcomes for informal carers who provide care for elderly people in the community.

Thu, 07/20/2017 - 15:21

Economic Burden And Health-Related Quality Of Life Of Patients With Cystic Fibrosis In Bulgaria

Objective: The aim of this study was to determine the economic burden from a societal perspective and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) in Bulgaria.

Thu, 07/20/2017 - 15:20

The effects of ill health and informal care roles on the employment retention of mid-life women: Does the workplace matter?

This article uses longitudinal data to measure the effects of ill health and informal care roles on the employment chances of mid-life women, and to examine how these effects are mediated by workplace characteristics. We find that women in jobs with lower skills/status encounter the greatest difficulty in finding accommodations for changes in their health and informal care roles. We identify an important role for paid sick leave and holiday leave in boosting employment retention.

Thu, 07/20/2017 - 15:20

Empowering carers to reconstruct their finances

This paper reports a welfare rights intervention for carers of dying people through seminars to help them organise family finances to deal with additional costs of the final illness, funeral costs and reconstruction of family finances after death. Seminars on financial affairs were provided to 103 carers and service users, and were evaluated by questionnaires. The seminars were very positively received by attenders, who felt better informed, but were not necessarily more confident in dealing with financial problems.

Thu, 07/20/2017 - 15:20

Formal support for informal caregivers to older persons with dementia through the course of the disease : an exploratory, cross-sectional study

BACKGROUND: In European countries, knowledge about availability and utilization of support for informal caregivers caring for older persons (≥65 years) with dementia (PwD) is lacking. To be able to evaluate and develop the dementia support system for informal caregivers to PwD, a survey of European support systems and professionals involved is needed. The aim of this study was to explore support for informal caregivers to PwD in European countries.

Thu, 07/20/2017 - 15:20

Extended safety and support systems for people with dementia living at home

Purpose – The purpose of this paper is to highlight the complexity surrounding the implementation of advanced electronic tracking, communication and emergency response technologies, namely, an extended safety and support (ESS) system for people with dementia (pwd) living at home. Results are presented from a Swedish demonstration study (2011-2012) conducted in 24 municipalities.

Thu, 07/20/2017 - 15:20

We didn't know they cared

Young carers may be more damaged by what we do to try to protect them.

Thu, 07/20/2017 - 15:20

The Impact of Caregiving: Is it who I am or what I do?

A major developmental task in adolescence is identity exploration. Some young carers, due to the level of care being provided, may not have an opportunity to explore who they are outside of being a caregiver. This qualitative study explored the lives of 14 young carers (4 males, 10 females) to reveal impacts within their lives and on their identity development. Results revealed that psychological, family, and social impacts interacted and influenced the degree to which the young carer adopted a caregiver identity. 

Thu, 07/20/2017 - 15:20