You are here

  1. Home
  2. Jour

Jour

Remember the body: promoting physical health in dementia care

This article outlines the benefits and challenges associated with health promotion for people with dementia and their carers. It then provides an overview of the Manchester Supporting Health Dementia Programme (MSHDP) pilot, which ran from November 2009 to March 2012. The programme provided a health check service and also aimed to improve the availability of access to health improvement opportunities. A summary of the main outcomes from the independent evaluation are provided.

Thu, 07/20/2017 - 15:20

Parent caregiving choices of middle-generation Blacks and Whites in the United States

Objective: This study compares how middle-generation caregivers and non-caregivers differ by race and explores racial differences in activities of daily living (ADL), instrumental activities of daily living (IADL), and financial assistance that middle-generation caregivers provide for their parents.

Thu, 07/20/2017 - 15:20

Social support in the case of illness: intergenerational solidarity

Background: Social support received through different forms of help from members of one's social network is an important element of coping with illness. In the case of illness, family members are the main providers of support, both within the same generation, but also, and increasingly so, between generations. This informal social support is related to socio-economic conditions of individuals: it is more common in lower economic and educational groups. Members of the middle generation, who help both the young and the old, are the main support providers.

Thu, 07/20/2017 - 15:20

Training as a vehicle to empower carers in the community: more than a question of information sharing

Much confusion still surrounds the concept of empowerment and how it is to be translated into practice within the context of community care for service users and carers. A major limitation has been the tendency to treat empowerment as synonymous with participation in decision-making with little attention given to the ‘ecological’ model of empowerment where linkages have been found between community participation and measures of psychological empowerment.

Thu, 07/20/2017 - 15:20

Access to respite breaks for families who have a relative with intellectual disabilities: a national survey

Aims.  This paper reports the findings of a national study of the variations in the provision and correlates of respite breaks to families.

Background.  Internationally, respite breaks are a major support service to family carers, demand for which often exceeds supply for persons with an intellectual disability. Hence, the length of breaks available to families has to be rationed. Nurses are often involved in such decisions.

Thu, 07/20/2017 - 15:20

The organisation of dementia care by families in Malta: the experiences of family caregivers

This paper discusses the experiences of dementia family caregivers in Malta. The study design was essentially exploratory as this is the first funded social research on dementia in the island of Malta. In-depth semi-structured interviews were conducted in October 2008 with 17 caregivers. Identification of caregivers was through their relatives’ attendance at a hospital based outpatient memory clinic. Interviews were recorded, transcribed and when required, phrases were translated from Maltese to English.

Thu, 07/20/2017 - 15:20

'It terrifies me, the thought of the future': listening to the current concerns of informal carers of people with a learning disability

The aim of this article is to report findings from a study that asked carers for their views on a wide range of topics. Issues relevant to the current concerns of carers are reported here. A mixed method triangulated design yielded both quantitative and qualitative data. A total of 647 members of a parent/carer federation were sent a questionnaire with a section on ‘current concerns’. The response rate was 23 percent (151 participants). Two focus groups were held with 15 carers who had completed the questionnaire.

Thu, 07/20/2017 - 15:20

Culture change

The number of people from minority ethnic groups who are living with dementia is rising steeply, yet awareness levels and diagnosis rates are worryingly low. An Alzheimer's Society project , The Information Programme for South Asian Families (IPSAF), which provides culturally tailored information information sessions aims to help solve this problem. The service comprises a series of face-to-face sessions which helps carers to build their understanding, knowledge and skills of dementia. An educational DVD is also provided for carers to take home and share with family members.

Thu, 07/20/2017 - 15:20

Liverpool Telecare Pilot: telecare as an information tool

The role of telecare systems is normally seen as identifying, and drawing attention to, situations of concern in the homes of service users. While this may currently be the primary reason for deploying such systems, the scope of telecare should not be limited to such an alarm generation role. The role of telecare in enhancing community-based care provision may be broadened by using similar, or identical, technology for providing relevant information to the carers of service users.

Thu, 07/20/2017 - 15:20

Informal care and support for carers in Sweden: patterns of service receipt among informal caregivers and care recipients

This study describes and analyses the kinds of support received by different categories of informal carers, and the kinds of help that care recipients receive in addition to that provided by various categories of carers. Data were collected in a Swedish county in 2000, by means of telephone interviews. The net sample consisted of 2,697 individuals 18–84 years old, and the response rate was 61%. The results showed that relatively few carers in any care category received any kind of support aimed directly at them as carers.

Thu, 07/20/2017 - 15:20