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Absolutely fabulous-But are we? Carers' perspectives on satisfaction with a palliative homecare service

People with terminal diagnoses are increasingly encouraged to stay at home for the trajectory of their illness. Consequently, relatives and friends are progressively undertaking the informal carer role more frequently in conjunction with formal palliative care teams. Although there is international literature on the efficacy of and satisfaction with publicly funded palliative homecare, to date, there is scant literature reporting satisfaction with privately funded palliative homecare especially in Australia.

Thu, 07/20/2017 - 15:13

Informal caregiving transitions, subjective well-being and depressed mood: Findings from the English Longitudinal Study of Ageing

Objectives: To prospectively investigate the impact of transitions in informal caregiving on emotional well-being over two years in a large population study of older people.

Thu, 07/20/2017 - 15:13

Valued aspects of primary palliative care: content analysis of bereaved carers' descriptions

Background: Informal carers provide the bulk of palliative home care. They largely rely on general practitioners (GPs) and district nurses to support them in this role, yet little is known about what carers themselves consider important in this support.

Aim: To identify what informal carers valued in the palliative support provided by GPs and district nurses by using carers' own descriptions of such support.

Design Of Study: Retrospective interviews. Setting: Primary care in Cambridgeshire.

Thu, 07/20/2017 - 15:13

Korean-American family postcaregivers on dementia caregiving: a phenomenological inquiry

The purpose of this article is to understand dementia caregiving and postcaregiving experience from the Korean-American family caregiver perspective. In this transcendental phenomenological study, I analyzed both in-depth interviews from 8 caregivers and field notes with the procedure of Moustakas' (1994) modification of the Van Kaam method.

Thu, 07/20/2017 - 15:13

Gender differences in the construction and experience of cancer care: The consequences of the gendered positioning of carers

The experience and construction of caring in 50 informal cancer carers, 35 women and 15 men, was examined using a critical realist approach and a mixed method design. Women reported higher rates of depression, anxiety, unmet needs and burden of care than men. No gender differences were found in time spent care-giving, suggesting that gendered roles are implicated in distress and coping. Semi-structured interviews with 13 carers were used to identify gender differences in caring, analysed using positioning theory.

Thu, 07/20/2017 - 15:13

The impact of lung cancer on patients and carers

This article aims to provide a brief review of the literature with regard to the impact of lung cancer on patients and their informal carers. Compared to other types of cancer, the distress associated with lung cancer has been found to be the most intense. Rather than focusing on symptoms in isolation recent emphasis regarding the symptom experience has been on symptoms clusters, as understanding these clusters may improve the management of ongoing and unrelieved symptoms.

Thu, 07/20/2017 - 15:13

Older caregivers' coping strategies and sense of coherence in relation to quality of life

AIM: This paper reports a study to investigate coping strategies and sense of coherence in relation to gender, the extent of care, caregiving activities and health-related quality of life in a population-based sample of caregivers aged 75 and over.

Thu, 07/20/2017 - 15:13

Consulting service users: the Stroke Association Home Therapy Project

In 1999, the Stroke Association set up a project to promote home-based occupational therapy for patients who had had a stroke and been discharged home from hospital. As part of the service evaluation, focus groups for service users and carers were set up in two of the sites to consult users about the changes in their quality of life during the period of the home therapy. A total of 11 service users and 9 carers attended the groups, representing 30% of the service users and 27% of the carers involved in the project.

Thu, 07/20/2017 - 15:13

Psychiatric nurses enhancing consumer and caregiver participation in the state of Victoria: the impact of history and policy

Australian mental health policy now clearly articulates that consumer and carer (informal caregiver) participation in all aspects of service delivery is an expectation. As the largest professional group, nurses clearly play a key role in translating policy into practice. The aim of this article is to briefly overview the history of mental health service development in Victoria, with specific emphasis on the development of psychiatric nursing. Changing perspectives of consumers of mental health services and their informal carers is discussed.

Thu, 07/20/2017 - 15:13