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This article considers the methodological uncertainties arising in the early months of a research project that involves the secondary data analysis, using narrative analysis methods, of lengthy interview transcripts with cancer patients and their main informal carers. It revisits the particular social contexts, purposes and intentions involved in the creation of the interview transcripts, then considers the new methodological challenges involved.

BACKGROUND: There is a growing appreciation of the role and needs of carers for people with mental health problems. Carers are a diverse group, including partners, relatives and friends who are seen as such by service users.

This article describes a caregiver education program that includes both family and professional caregiver issues developed by the Rosalynn Carter Institute for Human Development in the United States. In the program there are modules designed too bring professional and family caregivers together for a better appreciation of collaboration and teamwork; discussions of the meaning of caregiving; a module looking at how well carers are looking after themselves; modules focusing on building collaborative relationships with other caregivers; problem solving; and accessing resources.

This article draws on findings from a three-year project to develop and deliver culturally appropriate support group materials for South Asian and Eastern European family carers of relatives with dementia living in the UK. Analysis of interview and field note data revealed insights into how understandings of dementia in different cultural contexts can become operationalised through stigma processes and in turn influence the ways in which people with dementia and their family carers engage with formal and informal support. 

Aims.  The aim of this study was to investigate the impact of stroke on the patient's spouse, paying particular attention to psychiatric morbidity and the strain of caring, and correlating these with the degree of disability of the patient. The impact of impairment of speech was also investigated.

Background.  The impact of a stroke is not limited to the person who suffers it but also to the family, with the patient's spouse being particularly vulnerable. The literature suggests that the consequences for the spouse can be physical, psychological, economic and social.

Aim: To understand the perceived factors that shape decision-making around the time of residential care admission in older people.

Method: Two qualitative methods (telephone interviews at intervals post discharge from geriatric inpatient care and face-to-face interviews with older people and their family carers) were used as part of a multiphase mixed methods study of a cohort of 144 older people discharged from medical wards in a subacute assessment, treatment and rehabilitation facility.

Aim.  To explore first-time primary caregivers’ experience of the way mental health nurses and other mental health clinicians respond to them as carers of young people with first-episode psychosis.

Background.  Caregivers have a key role in supporting family members/relatives with mental illness, but their contribution is undervalued frequently by mental health nurses and other mental health clinicians.

Design.  Qualitative interpretative phenomenological analysis.

Aim.  This paper presents findings from secondary analysis of longitudinal data on correlates of care relationship mutuality collected from 91 carers of people with Alzheimer’s disease and Parkinson’s disease in the control group of a randomized trial of home-care skill training.

Swaleh Toofany examines the evolution and possible future options for hospital at home schemes

Healthcare providers are under pressure to deliver cost-effective care to a population that is ageing. Increased longevity means the number of patients with long-term conditions and chronic illness is growing. Expanding the range of services delivered to patients in their homes may provide a solution by keeping patients out of hospital.

Young carers often take on practical and/or emotional caring responsibilities that would normally be expected of an adult. For many of these children and young people, caring has been shown to have a detrimental effect on their lives. For example, caring at a young age appears to be associated with poor health and well-being, bullying and poorer educational outcomes. However, previous research has tended to be retrospective, carried out using small surveys of secondary school-aged children or to use qualitative methods with young people associated with caring projects.