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The differences in perceived burdens between forensic and non-forensic caregivers of individuals suffering from schizophrenia

This paper examines the burdens experienced by caregivers of people with schizophrenia. In-depth interviews were undertaken with 107 caregivers (79 caregivers of clients with a forensic history and 28 caring for non-offenders) and categorised into burden dimensions using content analysis. The severity of the burdens faced was also recorded. The types of burden experienced by the two groups were examined using chi squared and t-tests. Results indicated that the two groups described a similar number of burdens.

Thu, 07/20/2017 - 15:09

What do people value when they provide unpaid care for an older person? A meta-ethnography with interview follow-up

Government policies to shift care into the community and demographic changes mean that unpaid (informal) carers will increasingly be relied on to deliver care, particularly to older people. As a result, careful consideration needs to be given to informal care in economic evaluations. Current methods for economic evaluations may neglect important aspects of informal care. This paper reports the development of a simple measure of the caring experience for use in economic evaluations. A meta-ethnography was used to reduce qualitative research to six conceptual attributes of caring.

Thu, 07/20/2017 - 15:09

An evaluation of palliative care services in the community

To develop palliative care services it is important to evaluate local services and identifiy any gaps in provision. In this study a mapping exercise and a postal questionannaire were used to attempt to canvass the views of patients and carers using a service in Gloucestershire. Reports on the methodology and the findings of the questionnaire.

Thu, 07/20/2017 - 15:09

Estimating service demand for respite care among informal carers of people with psychological disabilities in Australia

Objective: To estimate service demand (willingness to seek or use services) for respite care among informal, primary carers of people with a psychological disability and to describe their characteristics. Methods: Analysis of data from the household component of the 2009 Survey of Disability Ageing and Carers (n=64,213 persons). Results: In Australia in 2009, 1.0% of people aged 15 years or over (177,900 persons) provided informal, primary care to a co-resident with a psychological disability.

Thu, 07/20/2017 - 15:09

Development of a holistic approach to assisting families with an Alzheimer's sufferer

This article canvases the diagnosis and treatment of Alzheimer's disease (AD), and proposes a holistic support regime for patients, carers and families.  The development of services for Alzheimer's patients and their families in the Nelson Mandela Metropole since 1991 is outlined.  Based on the expressed needs of families of AD sufferers specific support systems were identified, fund raising undertaken and projects initiated to offer respite to those in need of assistance.  The article offers insights into the nature and treatment of AD and how, based on a query from a single family, a syst

Thu, 07/20/2017 - 15:09

Carers

Presents a study which examined how the lives of young carers differ from other children and young people in the population who are not looking after someone who is sick or disabled. Method employed in the study; Personal and intimate care tasks undertaken by young carers; Effects of different caring experiences on children and young people's lives.

Thu, 07/20/2017 - 15:09

Carers' perspectives on their needs and local authority occupational therapy practice

Unpaid family carers are the main providers of care for older people in the community. Local authority occupational therapists are required by law to assess the needs of such carers in their work, targeting their interventions to support carers' roles. This small qualitative study identified the perceived needs of nine family carers of adults with physical disabilities in one English county, exploring the extent to which these needs were met by local authority occupational therapists.

Thu, 07/20/2017 - 15:09

Health-related Quality of Life in caregivers of patients with spinal cord injury (SCI). A Greek review

The consequences of spinal cord injury (SCI) not only affect patients' health-related quality of life (HRQoL) but also extend to the entire family. The health condition the injury imposes requires the participation of a family caregiver, who will be responsible for taking care of the individual in a disabling condition.

Thu, 07/20/2017 - 15:09

Disclosing a diagnosis: the Alzheimer Europe position

Jean Georges and Dianne Gove present Alzheimer Europe’s newly drafted position on the disclosure of the diagnosis to people with dementia and carers

Thu, 07/20/2017 - 15:09

The dyadic interaction of relationships and disability type on informal carer subjective well-being

Purpose: Care-related factors have frequently been associated with elevated levels of distress and diminished subjective well-being. However, these variables have traditionally been considered independently. The objectives of this study were to explore the subjective well-being of informal carers in Australia and to specifically examine the effect of the dyadic interaction between the caring relationship and type of disability on the subjective well-being of informal carers.

Thu, 07/20/2017 - 15:09