Jour

Objectives: A lack of compassion in UK healthcare settings has received much recent attention. This study explores the experiences of people with dementia in the last year of life and time surrounding death and how the presence and lack of compassion, kindness and humanity influenced the experience of care.

Design: Qualitative in-depth interviews with bereaved informal carers of people with dementia.

Setting: United Kingdom.

Retirement is often seen as a period dedicated to the enjoyment of one’s own leisure interests after many years of gainful employment. On the other hand, retired people are expected to remain productive by continuing to work, volunteering or by being involved in various caring tasks. When do Finnish working carers plan to retire and how do they envisage the weight of their care commitments related to other activities once they have left full-time work? The 19 female interviewees were born in 1953 or earlier, and they helped their parent(s).

Background: Most persons with dementia in the Netherlands live at home, where they are cared for by informal carers such as family members or friends, who offer this care unpaid. Their care-task poses a high burden on these informal carers, increasing the risk of health problems and social isolation. Many informal carers indicate they want more information on the behaviour of those they care for.

Objectives: To explore the perceptions of family carers, older people and health professionals in Australia about what constitutes elder abuse.

Methods: The Caregiving Scenario Questionnaire (CSQ) was disseminated to health professionals from two metropolitan hospitals, older volunteers and carers of older people with dementia recruited for other studies.

The Irish community is the oldest minority ethnic community in Britain. Despite an older age profile than general or minority ethnic populations, as well as excesses of mental and physical ill-health and socio-economic disadvantage, the age, poor health and social profile of the community is largely ignored by policy makers and providers. Several of these factors predispose the Irish community in England to a higher incidence of dementia. Unlike other minority ethnic groups with growing numbers of people with dementia, the incidence of dementia is already high.

In Australia, newly initiated, publicly subsidised ‘Home-Care Packages’ designed to assist older people (≥65 years of age) living in their own home must now be offered on a ‘consumer-directed care’ (CDC) basis by service providers. However, CDC models have largely developed in the absence of evidence on users’ views and preferences. The aim of this study was to determine what features (attributes) of consumer-directed, home-based support services are important to older people and their informal carers to inform the design of a discrete choice experiment (DCE).

Anne Marie Tunney and Assumpta Ryan discuss a study that used the experiences of women caring for survivors to assist service redesign

Aim  The aim of this study was to explore how members of a stroke carers’ support group perceived that services for stroke patients and their carers could be improved.

Objectives: To assess the effectiveness and cost-effectiveness of breaks in care in improving the well-being of informal carers of frail and disabled older people living in the community and to identify carer needs and barriers to uptake of respite services.

Data sources: Major electronic databases were searched from the earliest possible date to April 2008.

Aim.  The aim of this was to evaluate the effectiveness of interventions provided by a Community Mental Health Team (CMHT) in reducing stress in carers of individuals with dementia.

The article provides an overview on what is known about young carers in general and identify in and services in Canada. Young carers are defined as being anyone under the age of 18 years who is the primary caregiver in the family due to the parental illness, disability or addiction. It discusses the potential short and long term consequences of having to take on a care giving role within one's family that is age appropriately greater than one would expect in most families.