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The burden of living with and caring for a suicidal family member

Background: The family has a primary role in caring for family members who are suicidal and in the prevention of future suicide. However, the impact that suicidal behaviour has on these family members is poorly understood.

Aim: To explore the lived experiences of participants who cared for suicidal family members.

Methods: Eighteen participants were interviewed using a short topic guide. Responses were digitally recorded and transcripts were analysed using thematic analysis.

Thu, 07/20/2017 - 15:09

Negative impact and positive value in caregiving: validation of the COPE index in a six-country sample of carers

Purpose: The present study attempts to further validate the COPE Index on a large sample of carers drawn from six European countries. Design and Methods: We used a cross-sectional survey, with approximately 1,000 carers recruited in each of six countries by means of a common standard evaluation protocol. Our saturation recruitment of a designated quota of carers occurred by means of several channels, in identified geographical zones within countries.

Thu, 07/20/2017 - 15:09

Virtual Arm Representation and Multimodal Monitoring for the Upper Limb Robot Assisted Teletherapy

The use of technology in rehabilitation therapies targets the sustainability of health systems and the improvement of quality of life of the user (therapists, patients and informal carers). Robot or exoskeleton assisted rehabilitation systems, which are based on neurorehabilitation principles, are tools that not only help patients move the arm with precision; they also help reduce the fatigue of the therapist during the process.

Thu, 07/20/2017 - 15:09

Mutual care between older spouses with physical disabilities

This article explores mutual caregiving between older spouses aging with physical disabilities. Nine older couples, where both partners had lived long lives with physical disabilities, were interviewed as dyads about mutual caregiving. The couples not only had access to different kinds and degrees of formal support but also provided mutual care to each other in a variety of ways. Interview coding using grounded theory led to two overarching categories from which motivation for mutual caregiving could be understood.

Thu, 07/20/2017 - 15:09

Negotiating the role of expert carers on an adult hospital ward

Contemporary systems of welfare are increasingly underpinned by the assumption that families should care for their dependent adult relatives. Yet, the burgeoning empirical literature in this area has given little attention to the ways in which family caregivers fit into the service system. Drawing on interactionist theories of the division of labour, this paper employs ethnographic data, taken from a recent study, to explore the ways in which formal and informal carers negotiate ‘care’ on an adult medical ward.

Thu, 07/20/2017 - 15:09

Care time and costs of care for elderly persons with dementia

Aim: List care activities of formal and informal carers and calculate costs of care for elderly people with dementia. Comparison with those not suffering from dementia (control group) at home and in residential settings. Methods: The combined methodology of a retrospective questionnaire and a prospective diary was used to collect individual data on the use of health care (professional and informal care). Results and conclusions: For home care, we found that professional care and costs of materials does not differ in any significant way between the dementia group and the control group.

Thu, 07/20/2017 - 15:09

Who cares? Moral obligations in formal and informal care provision in the light of ICT-based home care

An aging population is often taken to require a profound reorganization of the prevailing health care system. In particular, a more cost-effective care system is warranted and ICT-based home care is often considered a promising alternative. Modern health care devices admit a transfer of patients with rather complex care needs from institutions to the home care setting.

Thu, 07/20/2017 - 15:09

Home care in Europe: a systematic literature review

Background: Health and social services provided at home are becoming increasingly important. Hence, there is a need for information on home care in Europe. The objective of this literature review was to respond to this need by systematically describing what has been reported on home care in Europe in the scientific literature over the past decade.

Thu, 07/20/2017 - 15:09

The pensions cost of caring

Considers how carers of working age incur pension penalties and the ways in which social security legislation has helped or hindered them in acquiring state pensions. Outlines how paid employment and earnings are related to caring responsibilities, discusses the impact of caring on state and private pensions, and considers how pension policy for the future may affect carers.

Thu, 07/20/2017 - 15:09

Committed to caring: carer experiences after a relative goes into nursing or residential care

This article presents the key findings from a collaborative study about the experiences and support needs of carers whose relatives are admitted into a nursing or residential care home. Drawing upon data from carers' qualitative accounts, it considers carers' post‐admission roles, responsibilities and profiles, and the contribution carers make to the continued care of their relative. Carers' post‐admission caring experiences are described in detail and differences between spouse carers and carers involved in looking after a parent are identified.

Thu, 07/20/2017 - 15:09