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The effectiveness of an Internet support forum for carers of people with dementia: a pre-post cohort study

Background: The well-being of informal carers of people with dementia is an important public health issue. Caring for an elderly relative with dementia may be burdensome and stressful, and can negatively affect the carer’s social, family, and professional life. The combination of loss, the physical demands of caregiving, prolonged distress, and biological vulnerabilities of older carers may compromise their physical health, increase social isolation, and increase the risk of anxiety and depressive disorders.

Thu, 07/20/2017 - 15:09

Understanding the impact of an Assertive Outreach Team on couples caring for adult children with psychosis

Carers play an essential role in the lives of people suffering from mental health problems. Caring is very often a relational activity carried out by family members. Assertive Outreach (AO) services ought to be particularly well placed to support carers, but their impact upon families is not well understood. We set out to understand the intervention of AO services from a family perspective, and in particular to explore its meaning from the perspectives of pairs of carers. Three pairs of carer-parents participated in six individual open-ended interviews.

Thu, 07/20/2017 - 15:09

Building on the benefits: assessing satisfaction and well-being in elder care

One hundred interviews were conducted with primary caregivers, with 63 held in the home of the caregiver and the remainder conducted in a location convenient to the caregiver. Each participant completed the Caregiver Well-Being Scale (CWB), the Caregiving Uplifts Scale (CUPL), the Caregiving Satisfaction Scale (CSS), and the Center for Epidemiologic Studies Depression Scale (CES-D).

Thu, 07/20/2017 - 15:09

Review: a meta synthesis of qualitative research into needs and experiences of significant others to critically ill or injured patients

Aims and objectives.  This study aimed to describe the significant others’ experiences and needs when a person is critically ill or injured in an acute care setting.

Background.  Being a significant other to a hospitalised critically ill or injured patient is a heavily distressing life event. Addressing significant others’ needs adequately has been shown to be essential to mitigate the psychological consequences of such distressing events.

Design.  A systematic review of qualitative research. Methods.  Meta-ethnographic synthesis was used for analysis.

Thu, 07/20/2017 - 15:09

What works well in community care: supporting older people in their own homes and community networks

This paper presents findings from a qualitative study that sought to identify what works well in supporting older people to live in their own homes and local communities. Drawing on data from six focus groups conducted with key stakeholders, including older people, carers, care managers and direct service providers, the shortcomings of existing services to meet the needs of older people are recognised and the paper seeks to move discusion forward to what might help improve provision.

Thu, 07/20/2017 - 15:09

Caring for mum and dad: lesbian women negotiating family and navigating care

This article reports on findings from a qualitative study that explored the experiences of twenty-one gay men and lesbian women who care, or cared, for a person with dementia in England. The aim of the study was to explore how a person's gay or lesbian sexuality might impact upon their experience of providing care in this context. Analysis of the data identified a number of consistent themes—carers' experiences of the early signs and symptoms of dementia, of receiving the diagnosis, becoming a carer and their hopes and fears for the future in light of their care-giving experiences.

Thu, 07/20/2017 - 15:09

Piloting a new approach in primary care to identify, assess and support carers of people with terminal illnesses: A feasibility study

Background: General practices in the United Kingdom are encouraged to have a protocol for the identification of carers and a mechanism for social care referral. However, a minority of carers are identified and those caring for someone with a terminal illness often cope until the situation becomes overwhelming. Earlier identification could enable more timely support.

The aim of this project was to model and pilot a systematic approach to identify, assess and support carers of people with supportive and palliative care needs in primary care.

Thu, 07/20/2017 - 15:09

End-of-Life Care and Preferences for Place of Death among the Oldest Old: Results of a Population-Based Survey Using VOICES-Short Form

Background: End-of-life care (EOLC) is a key component in care of older people. However, evidence suggests that the oldest old (>85 years) are less likely to access specialist EOLC.

Objective: The study's objective was to explore experiences of EOLC among the oldest old and determine their reported preference for place of death.

Design: The study involved a self-completion postbereavement survey.

Thu, 07/20/2017 - 15:09

Identifying needs, burden, and distress of carers of people with Frontotemporal dementia compared to Alzheimer's disease

The literature on carers of people with Frontotemporal dementia (FTD) is negligible compared to the vast literature on carers of people with Alzheimer’s disease (AD), and little research has compared the two groups. Research has mainly focused on identifying the behavioural characteristics of people with FTD or AD. The impact of these behaviours on the psychological well-being of carers of people with FTD is relatively unexplored.

Thu, 07/20/2017 - 15:09

Long-term Care Insurance and Carers' Labor Supply - A Structural Model

In Germany, individuals in need of long-term care receive support through benefits of the long-term care insurance. A central goal of the insurance is to support informal care provided by family members. Care recipients can choose between benefits in kind (formal home care services) and benefits in cash. From a budgetary perspective, family care is often considered a cost-saving alternative to formal home care and to stationary nursing care. However, the opportunity costs resulting from reduced labor supply of the carer are often overlooked.

Thu, 07/20/2017 - 15:09