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Care difficulties and burden during COVID‐19 pandemic lockdowns among caregivers of people with schizophrenia: A cross‐sectional study

Aims: The purpose of this study was to retrospectively investigate care difficulties experienced by caregivers of people with schizophrenia during COVID‐19 pandemic lockdowns in Japan (April 7‐May 25, 2020) and examine associations between these care difficulties during lockdowns and daily caregiver burden. Methods: Data were collected from 132 participants of the LINE Schizophrenia Family Association using an online survey.

Tue, 01/18/2022 - 16:21

Activating Patients and Families to Improve Palliative Care: The Waiting Room Revolution

We need to support and educate palliative care specialists and generalist providers, especially family physicians, on how to integrate an early palliative care approach into care for those with a serious illness. However, there are very few care providers compared to the number of patients and caregivers in society. To increase access to palliative care at a population level, we need a waiting room revolution, one where patients and families shift from being passive to being active in shaping their experience with serious illness.

Tue, 11/30/2021 - 16:37

The impact of the Covid 19 Pandemic on people with dementia and their carers (Findings from studies and key messages)

The COVID-19 pandemic and subsequent local, regional, and national lockdowns have led to significant disruption to health and social care services. For people with dementia and their family carers this is problematic. People with dementia rely upon timely and responsive services to live well. The abrupt closure and reduction of many health and community support services arising from the pandemic is of concern. Our two studies explored the impact of COVID-19 on the life quality of people with dementia and their carers.

Fri, 08/06/2021 - 11:01

Caring alone: Why Black, Asian and Minority Ethnic young carers continue to struggle to access support

This briefing looks at Black, Asian and Minority Ethnic (BAME) young carers and their specific and unique needs. BAME young carers have long been recognised as particularly vulnerable. The term BAME is inclusive of those who may have vastly different issues and vulnerabilities including within their own communities. For example, there are differences within Black, Minority Ethnic and many Asian families and communities. Asian communities themselves vary drastically also depending on their country of origin and time spent in the UK.

Fri, 08/06/2021 - 10:52

Caregiving in the United States 2020

First conducted in 1997 by the National Alliance for Caregiving and AARP, Caregiving in the U.S. 2020 update presents a portrait of unpaid family caregivers. Family and friends comprise the most basic unit of any society. For individuals who take on the responsibility of caring for another person through sickness or disability, it can often be challenging to see beyond the individual experience. As individuals, families, and communities continue to confront the novel coronavirus (COVID-19), we are reminded how much we need our family and close friends to keep going. As the U.S.

Fri, 07/23/2021 - 14:32

Breaks or breakdown: Carers Week 2021 report

Fewer than one in five (14%) exhausted unpaid carers are confident that the support they receive with caring will continue following the COVID-19 pandemic. After an extraordinarily challenging year providing many more hours of care for loved ones during the pandemic - coping with reduced support from health and care services as well as limited help from family and friends - unpaid carers are seriously worried about the support they will have to help them care in the future.

Thu, 06/17/2021 - 10:14

Repositioning respite in consumer directed service systems

This paper was developed by Carers NSW Policy and Research team on behalf of, and with extensive input from, members of the Carer Respite Alliance (CRA), a working group formed in 2017 in response to increasing numbers of carers and other stakeholders in NSW expressing concerns about the state of the respite sector in NSW.

Fri, 05/07/2021 - 16:39

Care, Dignity and Respect - The Aged Care Royal Commission Final Report

The Final Report of the Royal Commission into Aged Care Quality and Safety was tabled in Parliament on 1 March 2021. In their Report, titled Care, Dignity and Respect, Royal Commissioners Tony Pagone QC and Lynelle Briggs AO call for fundamental reform of the aged care system.  The report is issued in 5 volumes.

Tue, 04/06/2021 - 14:28

Supporting carers to succeed in Australian Higher Education

Extract from Executive summary: Australians who care for people with a disability, illness, or a broader need often embody many of the qualities sought by universities. In providing unpaid labour to support family members and friends, carers typically demonstrate resilience, selflessness, and a commitment to societal health, wellbeing, and cohesion. Provision of this critical support is often required while simultaneously managing high demands on time and limited financial resources (ABS 2018a, 2018b).

Tue, 04/06/2021 - 14:16

Carer well-being index

Embracing CarersTM created the Carer Well-Being Index to determine the current and residual impacts of COVID-19 on unpaid carers, including its impact on their economic, physical and psychological well-being. While carers weren’t alone in experiencing 2020 as a highly emotional and unstable period, they faced unique pressures, demands and time commitments often overlooked by society.

Tue, 04/06/2021 - 14:06

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