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Journal article

Longitudinal Changes in and Modifiable Predictors of the Prevalence of Severe Depressive Symptoms for Family Caregivers of Terminally Ill Cancer Patients over the First Two Years of Bereavement

Background: Bereaved families endure tremendous grief. However, few studies have longitudinally investigated caregivers' bereavement grief for more than one year postloss and none is from family-oriented Asian countries. Objectives: We explored longitudinal changes in and modifiable predictors of severe depressive symptoms for Taiwanese family caregivers of terminally ill cancer patients over the first two years postloss.

Wed, 10/24/2018 - 10:07

"It's a waiting game" a qualitative study of the experience of carers of patients who require an alternate level of care

Background: Delayed hospital discharge (also known as Alternate Level of Care or ALC) is a global health care quality issue with negative implications for people (e.g., functional decline) and the health care system (e.g., costly interruptions in hospital flow and procedures). ALC disproportionately impacts people with cognitive impairment, and insight into the needs and experiences of this specific sub population and their carers is lacking.

Wed, 10/24/2018 - 09:58

The burden of informal caregiving for cancer patients

The informal caregiving for cancer patients is a complex healthcare activity. Experts have suggested that the incidence of cancer cases is expected to rise five fold by the year 2025. Now the major concern that arises is that as the number of cancer cases will increase so is the need for informal caregiving for cancer patients that will rise manifold. The present review paper will throw light on the meaning of informal caregiving and the subjective and objective burden of that the caregivers have to face as a consequence to informal caregiving.

Wed, 10/24/2018 - 09:50

Effects of filial piety in the experiences of informal caregivers

Informal caregivers are the family members and friends who provide help and support daily to individuals who are temporarily or permanently unable to function independently. They have to engage in a range of activities. They have a long term commitment to the persons they are helping and are usually not paid for their efforts. In certain Asian cultures, there is a peculiar concept that seems to be playing a great role in aiding people to adhere to their responsibility and derive satisfaction from their role of caregiving. This is known as filial piety.

Wed, 10/24/2018 - 09:40

Challenges in supporting lay carers of patients at the end of life: results from focus group discussions with primary healthcare providers

Background: Family caregivers (FCGs) of patients at the end of life (EoL) cared for at home receive support from professional and non-professional care providers. Healthcare providers in general practice play an important role as they coordinate care and establish contacts between the parties concerned. To identify potential intervention targets, this study deals with the challenges healthcare providers in general practice face in EoL care situations including patients, caregivers and networks.

Wed, 10/24/2018 - 09:27

Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

Background: Palliative care in Indonesia is problematic because of cultural and socio-economic factors. Family in Indonesia is an integral part of caregiving process in inpatient and outpatient settings. However, most families are not adequately prepared to deliver basic care for their sick family member.

Wed, 10/24/2018 - 09:19

Developing a complex intervention programme for informal caregivers of stroke survivors: The Caregivers' Guide

Background Stroke affects the entire family system. Failure to meet the needs of caregivers leads to physical and mental overburdening. Stroke caregivers may benefit from professional support. The literature reviews have shown that there is still no clarity concerning the most appropriate set-up of a support programme. In Germany, there is no stroke caregiver support programme that operates throughout the course of rehabilitation. Aim The aim was to develop a complex intervention programme for stroke caregivers in North-Rhine Westphalia, Germany.

Wed, 10/24/2018 - 09:12

Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

The objective of this qualitative study was to examine how family caregivers of individuals with traumatic brain injury (TBI) describe their quality of life in the context of their caregiving role. Fifty-two caregivers of adults with moderate or severe TBI (n = 31 parents,n = 21 partners/spouses; 77% female; mean age = 57.96 years, range = 34–78 years) were recruited from three data collection sites to participate in focus groups. Thematic content analysis was used to identify two main meta-themes: Caregiver Role Demands and Changes in Person with TBI.

Tue, 10/23/2018 - 11:56

‘It’s Like Chicken Talking to Ducks’ and Other Challenges to Families of Chinese Immigrant Older Adults in Long-Term Residential Care

Immigrant older adults are increasingly moving into long term residential care (LTRC) homes; however, most were designed and continue to be run in accordance with Anglocentric norms and values. Participation and interest in Family Councils—through which they might collectively voice concerns—was low within our purposive sample of nine Chinese-origin residents living in LTRC homes and 11 family carers.

Tue, 10/23/2018 - 11:46

Role of family caregivers' self-perceived preparedness for the death of the cancer patient in long-term adjustment to bereavement

Background: A substantial number of family caregivers go through bereavement because of cancer, but little is known about the bereaved caregivers' long-term adjustment. This study aimed to document levels of bereavement outcomes (prolonged grief symptoms, intense emotional reaction to the loss, depressive symptoms, and life satisfaction) among family cancer caregivers 3-5 years post-loss and to investigate how self-rated preparedness for the patient's death predicted those bereavement outcomes.

Tue, 10/23/2018 - 11:38