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Journal article

Economic Burden of Hospitalization with Acute Wheezing in Preschool Children: A Multi-Center Study

Background: Wheezing is an important health problem in Thailand especially among preschool age.; Objective: The aim of this study was to estimate costs of wheezing for hospitalization in preschool children under patient, provider, and societal perspectives.

Wed, 12/21/2022 - 11:02

Efficacy of Simulation for Caregivers of Children With a Tracheostomy

This study aimed to show simulation improves confidence and competence in caregivers of children with a tracheostomy and examined the impact on patient emergency department visits and mortality. All participants received standard classroom training. One group also received training using simulation. Confidence at post-test was significantly greater in the simulation group. Correlation between post-test confidence and competency measures was not statistically significant.

Wed, 12/21/2022 - 10:54

Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media

Objective: To explore the experiences, expectations, and motivations of parents/caregivers of children with otitis media who were booked to undergo tympanostomy tube insertion.

Method: A cross-sectional cohort study was conducted using semistructured interviews with 39 parents. Interviews were conducted via telephone and analyzed for key themes.

Wed, 12/21/2022 - 10:51

Adaptation and Feasibility of the interRAI Family Carer Needs Assessment in a Pediatric Setting

Family carers of children with serious illness contribute many hours of medical care in addition to usual daily care. Assessing the needs and supports of family carers is not routine practice. This study is the first to utilize the interRAI Family Carer Needs Assessment in carers of children, seeking to evaluate and improve its ability to capture their needs. This is a prospective pilot study of family carers of children with serious illness receiving care at a pediatric hospice. Thirty carers completed the self-assessment form.

Wed, 12/21/2022 - 10:48

Empowering Children with Autism Spectrum Disorder and Their Families within the Healthcare Environment

Caregivers of patients with ASD have reported dissatisfaction with healthcare experiences due to the lack of healthcare provider confidence, knowledge, and skills in managing the challenging behaviors associated with ASD (Bultas & McMillin, 2016). As healthcare professionals, there is a need for continuous education regarding ASD to increase healthcare provider confidence in working with this population, as well as improve overall healthcare experiences for patients with ASD and their families.

Wed, 12/21/2022 - 10:46

Reliability and Validity of a Chinese-Version Normalization Assessment Measure for Primary Caregivers of Children With Cancer

Background: "Normalization" refers to the process whereby a household with a chronically ill member returns to a normal life to reduce its distress. There has been no valid and reliable instrument to investigate such normalization in Taiwan.

Objective: The aims of this study were to develop and validate a Chinese version of the Normalization Assessment Measure for Caregivers of Children With Cancer (NAM-CCC).

Wed, 12/21/2022 - 10:40

Parents’ and carers’ experiences of transition and aftercare following a child’s discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review

Objectives: To explore parents’ experiences of transition and aftercare following their child’s discharge from a paediatric intensive care unit to an in-patient ward.

Wed, 12/21/2022 - 10:29

Hospitalized Children - Parents' and Nurses' Collaboration in Procedural Situations

Background: When children are hospitalized, collaboration between parents and nurses is initiated. This qualitative study explored parents' and nurses' experiences of collaboration, and the sharing of responsibility and tasks in the care of hospitalized children regarding procedural and treatment situations.

Wed, 12/21/2022 - 10:26

Dietary treatment of Crohn's disease: perceptions of families with children treated by exclusive enteral nutrition, a questionnaire survey

Background: Diet is strongly associated with the aetiology of Crohn's Disease (CD) and exclusive enteral nutrition (EEN) is the primary induction treatment in paediatric CD. This study explored opinions around the use of EEN and alternative novel, solid food-based diets (SFDs) expressed by paediatric patients with CD, previously treated with EEN and their parents.

Wed, 12/21/2022 - 10:22

Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18

The purpose of this study is to analyze the experience of hope that appears in a parent's blog presenting everyday life while caring for a child with Trisomy 18 (Edwards syndrome). The author, Rebekah Peterson, began her blog on 17 March 2011 and continues to post information on her son Aaron's care. The analysis of hope in the blog is carried out using a mixed methodology: initial and focused coding using Charmaz's constructed grounded theory and elements of Colaizzi's method.

Wed, 12/21/2022 - 10:14

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