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Journal article

Caregivers' experiences with the new family‐centred paediatric physiotherapy programme COPCA: A qualitative study

Background: Caregivers' experiences during early intervention of their infant with special needs have consequences for their participation in the intervention. Hence, it is vital to understand caregivers' view. This study explored caregivers' experiences with the family‐centred early intervention programme "COPing with and CAring for infants with special needs" (COPCA). Methods: The data of this qualitative study were collected after 6 months of COPCA intervention in 15 families with an infant with special needs.

Wed, 12/28/2022 - 21:26

'Knocking on Doors that Don't Open': experiences of caregivers of children living with disabilities in Iquitos and Lima, Peru

Background: More than one billion people worldwide live with a disability. Despite advances in recognising inequalities experienced by people with disabilities, barriers to services and stigmatisation still exist. The aims of this study were to explore: (1) perceptions and experiences of services specifically available to people with disabilities and their caregivers and (2) the perception of disability.

Wed, 12/28/2022 - 19:35

The resilient caregiver

The article highlights the significance for family caregivers and parents of children with disabilities to take care of themselves while caring for another. Topics covered include the effect of caregiving on the caregiver's health, tips for parents on how to stay healthy so they can care for their child, and downtime activities and other stress relievers for family caregivers.

Wed, 12/28/2022 - 19:31

Family Impact of Child Oro-Facial Cleft

Wed, 12/28/2022 - 19:16

Caregiver Burden and Its Associated Factors in Caregivers of Children and Adolescents with Chronic Conditions

Background: Few studies have been conducted on the burden of care in caregivers of children with chronic illnesses. This study investigated the burden of care and associated factors in first-degree caregivers of children and adolescents with chronic conditions. Methods: A cross-sectional study was conducted from June to September 2017 on 385 first-degree caregivers of children and adolescents with chronic disorders.

Wed, 12/28/2022 - 18:36

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