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Informal carers: A focus on the real caregivers of people with cancer

Background: Those who become active caregivers out of their simple need to be included in their loved ones' experience may act as a force in the support and sustenance of the person with cancer. Apart from family members, individuals "considered as family" by the patient may actively participate in the patient's cancer journey.

Thu, 07/20/2017 - 15:23

Resilience among patients with amyotrophic lateral sclerosis (ALS) and their caregivers

Amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disorder, is the most common form of motor neuron disease in adults. People with ALS become severely disabled when the disease is progressing. The confrontation with constant losses, with dying and death poses enormous challenges both for them and for informal carers, who are most often spouses or close family members. However, there is evidence that the quality of life of ALS patients is often quite high and not correlated with the physical status. What does this mean for the quality of life of the caregivers?

Thu, 07/20/2017 - 15:22

The effect of age on referral to and use of specialist palliative care services in adult cancer patients: A systematic review

Objective: to investigate variations in the use of specialist palliative care (SPC) services for adult cancer patients, in relation to age.

Design: systematic review of studies examining use of or referral to SPC services in adult cancer patients.

Thu, 07/20/2017 - 15:19

Resource allocation priorities in social care for adults with a learning disability: An analysis and comparison of different stakeholder perspectives

Purpose – How resources for social care are allocated to individual service users has long been a concern. There are debates regarding the priority given to certain needs in Resource Allocation Systems (RASs). The purpose of this paper is to compare the views of adults with a learning disability and Directors of Adult Social Care regarding their priorities for resource allocation with priorities arising from observed resource allocation decisions.

Thu, 07/20/2017 - 15:19

Impact of caregiving on women's health and quality of life

BACKGROUND: Informal care currently lies at the heart of the debate on welfare policies since demands for such care are increasing and the future availability of informal caregivers is uncertain.

OBJECTIVE: To analyze the distribution of the burden of informal care between men and women and its consequences on health and quality of life.

Thu, 07/20/2017 - 15:18

The effectiveness of paid services in supporting unpaid carers' employment in England

This paper explores the effectiveness of paid services in supporting unpaid carers’ employment in England. There is currently a new emphasis in England on ‘replacement care’, or paid services for the cared-for person, as a means of supporting working carers. The international evidence on the effectiveness of paid services as a means of supporting carers’ employment is inconclusive and does not relate specifically to England. The study reported here explores this issue using the 2009/10 Personal Social Services Survey of Adult Carers in England.

Thu, 07/20/2017 - 15:17

Interventions to improve continuity of care in the follow-up of patients with cancer

Background: Care from the family physician is generally interrupted when patients with cancer come under the care of second-line and third-line healthcare professionals who may also manage the patient’s comorbid conditions. This situation may lead to fragmented and uncoordinated care, and results in an increased likelihood of not receiving recommended preventive services or recommended care.

Objectives: To classify, describe and evaluate the effectiveness of interventions aiming to improve continuity of cancer care on patient, healthcare provider and process outcomes.

Thu, 07/20/2017 - 15:16

Developing and implementing telecare enhanced services in Scotland

The author discusses the experience with four Telecare technologies deployed by the Perth-Kinross Council to enable vulnerable clients, especially those with cognitive disabilities and functional disabilities, to remain safely in their homes with the support of formal and informal carers. This chapter presents the challenges of moving Telecare services from government funded demonstrations to locally supported permanent programs. Special attention is paid to potential barriers relating to sustainable funding and insufficient evidence of effectiveness.

Thu, 07/20/2017 - 15:16

Cooperation and negotiations in the home-healthcare sector

The degree of cooperation between home-healthcare agencies on the one hand and other providers and financing agencies on the other hand is characterized by a complex work process. The predominant analysis of insufficient cooperation is rather a description of its structural conditions, and says less about how work is actually performed. The presented study utilizes the Negotiated Order Approach by Strauss and colleagues to analyze how different perspectives are translated, how tasks are planned and how different commitments are made compatible.

Thu, 07/20/2017 - 15:13

Empowerment, quality of life and participation in neurological rehabilitation. Empirical study with stroke patients and their relatives

The active role (participation) that patients with chronic conditions are able to achieve has increasingly been recognised as a measure for the effectiveness of prevention and rehabilitation strategies. An empowerment scale is an especially effective instrument for measuring social participation and was applied to stroke patients in neurological rehabilitation for the first time. 26 stroke survivors and 26 informal carers who participated in self-help groups in Lower Austria were surveyed. The mean age was 63.9 (±10.4) (stroke survivors) and 61.9 (±9.6) years (informal carers).

Thu, 07/20/2017 - 15:12