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Focus on home: what time-use data can tell about caregiving to adults

This study analyses data from Statistics Canada's 1998 social survey of 10,749 people to learn more about the nature and situation of Canadian adults providing care at home to other adults. Data included time-use and respondents' sociodemographic, cultural, work, and leisure characteristics, as well as outcome factors. The analyses found 212 respondents (about 2 percent) providing personal, medical, or other care to other household adults on the day studied. Carers were compared to those not found to provide these services.

Thu, 07/20/2017 - 15:20

Beyond We Care Too

The National Black Carers and Carers Workers Network aims to ensure that the voices of carers from black and minority ethnic groups are heard. This article provides a brief overview of the work and main concerns of the Network.

Thu, 07/20/2017 - 15:20

Working together - learning through sharing

Purpose – This paper aims to examine the barriers and enablers to working together in social care, focusing on the experiences of carers and practitioners.

Design/methodology/approach – The project employed a change project method which brings research and practice together to identify a problem, seek ways to resolve it, and develop resources to implement the learning in practice.

Thu, 07/20/2017 - 15:20

Developing an inclusive approach to dementia care

This paper critically examines the trend within dementia care to focus either on people with dementia or their informal carer. Attention is given to the alliances and collusions that may develop within triads comprising people with dementia, their carers and dementia care practitioners and the implications for this upon the distribution of power. The paper outlines an inclusive model of dementia care in which the needs of the person with dementia, family carers and the dementia care practitioner are understood in terms of inclusion.

Thu, 07/20/2017 - 15:20

Primrose: an Alzheimer’s Society branch on wheels

James Feeney, Dawn John and Christina Maciejewski describe the work of the Alzheimer’s Society Cardiff Carers’ Bus

Thu, 07/20/2017 - 15:20

Service use and needs of people with motor neurone disease and their carers in Scotland

A national study of patients with motor neurone disease (MND) and their carers was conducted in Scotland in late 1996. A questionnaire covering areas such as: use of medical, social and voluntary services; use of or waiting for specialised equipment; satisfaction with provided services; and standard demographic data was used in face-to-face interviews conducted by the four Scottish Motor Neurone Disease Association care advisers. The care advisers also assessed the respondent’s level of impairment, using a standard instrument: the Amyotrophic Lateral Sclerosis Severity Scale (ALSSS).

Thu, 07/20/2017 - 15:19

Copying letters to service users with learning disabilities: opinions of service users, carers and professionals working within learning disability services

The NHS Plan, Department of Health (2000) made a commitment that patients should be able to receive copies of clinicians’ letters about them as a right in order to improve communication and enable patients to participate in their care. In South Gloucestershire, the opinions of local service users with learning disabilities, their carers, and professionals working within learning disability services about this issue were sought using questionnaires and focus groups in order to identify and then develop good practice.

Thu, 07/20/2017 - 15:19

The time perspective of the Alzheimer caregiver

Purpose of the study: Caring for a spouse diagnosed with Alzheimer’s disease holds potentially severe negative consequences for the physical and psychological well-being of the caregiver. As it is known that the maintenance of a flexible time perspective holds benefits for individual health, the main purpose of this study was to identify and describe the changes in the time perspective of persons caring for a spouse diagnosed with Alzheimer’s disease.

Thu, 07/20/2017 - 15:19

Social Services and Well-being (Wales) Act 2014: part 3 code of practice (assessing the needs of individuals)

This code provides guidance to the Part 3 of the Social Services and Well-being (Wales) Act 2014, setting out a process for assessing the needs of an individual for care and support, or support in the case of a carer; a process of assessment that will apply to all people – children, adults and carers; and a process of review and re-assessment that will apply to assessments.

Thu, 07/20/2017 - 15:19

Coping with dementia and older families of adults with Down syndrome

The authors studied a group of older carers of aging adults with Down syndrome (DS) to ascertain what effects such caregiving may have on them given the presence or possibility of age-associated decline or dementia. The study also examined the comparative levels of care provided, key signs noted when decline was beginning, the subjective burden experienced, and what were the key associated health factors when carers faced a changed level of care.

Thu, 07/20/2017 - 15:19

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