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Web of science - exported 12/7/2016

Relational Experiences of Family Caregivers Providing Home-Based End-of-Life Care

The multiple relationships involved in home-based end-of-life care have received little systematic analysis. As part of a focused ethnographic study examining client–caregiver–provider relational care experiences within the sociocultural context of home-based end-of-life care, this article describes the provision of end-of-life care to older adults with advanced cancer from the perspective of family caregivers. Data were collected through in-depth interviews (n = 16) with 4 family caregivers and participant observations in each of the 4 households over a 6- to 8-month period.

Thu, 07/20/2017 - 15:12

Informal support in Portugal by individuals aged 50+

In Portugal, individuals aged 50+ have an important role in the provision of co-residential care. This study aimed to rank Portugal relative to 15 European countries with regard to the prevalence of co-residential care (daily or almost daily personal care), and extra-residential help/care (household help and/or personal care) provided by individuals aged 50+, and determine the factors associated with the provision of these types of support in the Portuguese context.

Thu, 07/20/2017 - 15:12

'Mastering an unpredictable everyday life after stroke' - older women's experiences of caring and living with their partners

Introduction:  The shift from older persons living in institutions to living in the community naturally affects both the older persons and their partners. The informal care is often taken for granted, and the research that focuses on the diversity of older female carers needs is scarce.

Aim:  To explore and learn from the older women how they experience their life situation and formal support as carers of their partners after stroke and to suggest clinical implications.

Thu, 07/20/2017 - 15:12

Caregivers' anxiety and self-efficacy in palliative care

This study examined the relationship between caregivers' anxiety supporting a patient with advanced cancer and self-efficacy and their socio-demographic characteristics, and then whether these variables could influence their self-efficacy. One hundred and seven caregivers of advanced cancer patients participated in the study and completed the Greek versions of the State–Trait Anxiety Inventory (STAI) and the General Perceived Self-efficacy Scale (GSE).

Thu, 07/20/2017 - 15:12

Palliative care for heart failure in Greece

While few palliative care units are available for cancer patients in big cities of Greece, this specialized care is generally unavailable for non-cancer patients. No protocols are in use and the use of advance directives and discussions around euthanasia still represents a taboo subject for Greek families. Patients will receive standard hospital care but not necessarily psychological or social support. Terminal patients will rather finish their life in a hospital bed, a tendency that has accentuated these last decades.

Thu, 07/20/2017 - 15:12

Robots and the Division of Healthcare Responsibilities in the Homes of Older People

This paper briefly describes the method of a qualitative study, which used focus groups to elicit the views of older people and formal and informal carers of older people on the ethical issues surrounding the introduction of social robots into the homes of older people. We then go on to sketch some of the tensions and conflicts that can arise between formal carers, informal carers, and older people when trying to negotiate the task of dividing care responsibilities, and describe how the introduction of robots may exacerbate, or ease, these tensions.

Thu, 07/20/2017 - 15:12

How does a cancer education program impact on people with cancer and their family and friends?

Background. In this article, we report on the effects of patient education for people with cancer in comparison to family and friends. Methods. Data are from 666 participants with cancer and 324 family and friends who completed preprogram and postprogram questionnaires. Results. Results show high levels of participant satisfaction and positive changes in measures such as illness perceptions and emotional functioning. In many cases, the pattern of change was different for people with cancer compared to family and friends. Conclusions.

Thu, 07/20/2017 - 15:12

Perspectives of elderly people receiving home help on health, care and quality of life

From a nursing perspective it is important to have information about the type of care needed, the reasons care is needed and quality of life among the most elderly people living in their own homes, in order to support their independence and maximise their quality of life. Thus a study was performed to investigate people aged 75 years and older dependent on care from professionals and/or a next of kin, their functional health, diseases, and complaints in relation to quality of life as perceived by themselves.

Thu, 07/20/2017 - 15:12

Negative/positive home-based caregiving appraisals by informal carers of the elderly in Japan

This study aimed to determine factors associated with negative/positive home-based caregiving appraisals by informal carers of older people in Japan to consider which family carers’ community health nurses should focus on.

Thu, 07/20/2017 - 15:12

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