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Web of science - exported 12/7/2016

The burden of the informal carers of the dependent individual in the domiciliary context

Background: In western societies, the aging population and the social-labour pressures cause difficulties to the families with dependent individuals at domiciliary context. The purpose of this study is to know the main factors that determine the burden of informal carer of the dependent individual in the domiciliary context.

Methods: We used a non-probabilistic sample, formed by 66 informal carers, mostly female (73.9%), whit an average age of 57.24 years.

Thu, 07/20/2017 - 15:12

Monetary Valuation of Informal Care Based on Carers' and Noncarers' Preferences

Objectives: To elicit willingness-to-accept (WTA) values for informal care based on the preferences of informal carers and noncarers.

Thu, 07/20/2017 - 15:12

The experiences of neighbour, volunteer and professional support-givers in supporting community dwelling older people

Public policy increasingly emphasises the importance of informal support networks to meet the needs of the ageing population. Evidence for the types of support neighbours provide to older people and how neighbours collaborate with formal support-givers is currently insufficient. Our study therefore explored (i) types of informal neighbour support and (ii) experiences of neighbours, volunteers and professionals providing support. Interviews with nine Dutch neighbour support-givers, five volunteers and 12 professionals were conducted and subjected to latent content analysis.

Thu, 07/20/2017 - 15:12

Perceptions of the role of general practice and practical support measures for carers of stroke survivors: a qualitative study

Background: Informal carers frequently suffer adverse consequences from caring. General practice teams are well positioned to support them. However, what carers of stroke survivors want and expect from general practice, and the practical support measures they might like, remain largely unexplored.

Thu, 07/20/2017 - 15:12

'Seeking': a key activity for new family carers of stroke survivors

Stroke is one of the major causes of disability in the United Kingdom and considerable numbers of stroke survivors need help and support from family carers, The sudden and unexpected nature of stroke means that there is very little time for family members to prepare for a caring role. This paper draws on data from 37 interviews with 14 new carers of stroke survivors and highlights the uncertainty and lack of confidence that family members experience in adopting a caring role.

Thu, 07/20/2017 - 15:12

Exploring identity in the 'figured worlds' of cancer care-giving and marriage in Australia

Following changes in the structure and funding of the Australian medical system, patients have become consumers' or clients'. Family and friends have become carers' or caregivers', signifying their increased responsibilities as patients move from hospitals to communities. While policy makers embrace the term carer', some argue that the title is not widely recognised and has disempowering connotations. This paper examines spouses' reflections on the term carer' based on qualitative interviews with 32 Australians caring for a spouse with cancer from a study conducted between 2006 and 2009.

Thu, 07/20/2017 - 15:12

Social participation and family carers of people living with dementia in Australia

This paper reports on a study exploring the experiences and meaning of social participation for family carers of people living with dementia. Participants were 33 family carers (17 spouses and 16 adult children) of older adults diagnosed with dementia (any stage or type) who responded to advertisements by the national Alzheimer's association, Alzheimer's Australia. Data were collected through semi-structured face-to-face and/or telephone interviews using an interview guide, which included prompts such as ‘Tell me about what social participation means to you’, and ‘How did this change…’.

Thu, 07/20/2017 - 15:11

The nature and constitution of informal carers' information needs: what you don't know you need is as important as what you want to know

Background. We explore the nature and aspects of the information needs of informal carers. A comprehensive understanding of these needs is important because it is the first step to meeting these needs effectively. Aim. We report on an empirical validation of a framework for understanding the information needs of carers, composed of four need states: recognised-demanded, recognised-undemanded, unrecognised-demanded, and unrecognised-undemanded. Methods. A qualitative study employed semi-structured interviews with nine informal carers of diabetic children.

Thu, 07/20/2017 - 15:11

Review of the literature on the effects of caring for a patient with cancer

Objective: To adequately help family caregivers (FCs) of cancer patients, clinicians need to understand the complexity of the problems and responsibilities associated with cancer patients illness that FCs experience. Methods: This systematic review identified the types of problems and burdens that FCs of cancer patients experience during the patient's illness. We also analyzed the language caregivers use to communicate their problems and responsibilities related to caregiving for the cancer patient.

Thu, 07/20/2017 - 15:11

Gendering the "graying" of society: A discourse analysis of the care gap

This article analyzes to what extent the "care-gap"-that is, too few carers looking after increasing numbers of the elderly has become part of the problem definition of the demographic shift in the Netherlands in reports of the major scientific policy advisor to the government. Do these reports still assume a gender order in which women are informal carers and men are breadwinners? What notions about gender are circulating, and is the gender order challenged by policy recommendations?

Thu, 07/20/2017 - 15:11

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