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Web of science - exported 12/7/2016

The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England

The aim of this study was to explore the needs of carers of men with prostate cancer and to identify barriers and enablers to meeting these needs. Carers were recruited to focus groups or interviews. These were recorded, transcribed and analysed by two researchers using Nvivo QSR6 and the Framework approach to index, chart and analyse data to identify emergent themes of the needs of carers, and barriers and enablers to meeting these needs. Fifteen carers took part in focus groups and 19 were interviewed. Carers' needs varied and were often unmet because of barriers to existing services.

Thu, 07/20/2017 - 15:13

Malnutrition in the UK: policies to address the problem

In 2007, the estimated cost of disease-related malnutrition in the UK was in excess of £13×109. At any point in time, only about 2% of over 3 million individuals at risk of malnutrition were in hospital, 5% in care homes and the remainder in the community (2–3% in sheltered housing).

Thu, 07/20/2017 - 15:12

Helping occupational performance through engagement: A service evaluation of a programme for informal carers of people with dementia

Statement of context: The Helping Occupational Performance through Engagement programme is a series of workshops which aim to equip informal caregivers with the skills and knowledge they require to engage a person with dementia in meaningful daily occupations.

Thu, 07/20/2017 - 15:12

Ethical Dimensions of Human-Robot Interactions in the Care of Older People: Insights from 21 Focus Groups Convened in the UK, France and the Netherlands

We briefly report the method and four findings of a large-scale qualitative study of potential users' views on the ethical values that should govern the design and programming of social robots for older people. 21 focus groups were convened in the UK, France and the Netherlands.

Thu, 07/20/2017 - 15:12

Measuring the impact of informal elderly caregiving: a systematic review of tools

Purpose: To classify and identify the main characteristics of the tools used in practice to assess the impact of elderly caregiving on the informal carers' life. Methods A systematic review of literature was performed searching in Embase, MEDLINE, PsycINFO, CINAHL, IBECS, LILACS, SiiS, SSCI and Cochrane Library from 2009 to 2013 in English, Spanish, Portuguese and French, and in reference lists of included papers. Results The review included 79 studies, among them several in languages other than English.

Thu, 07/20/2017 - 15:12

Next-of-kin caregivers in palliative home care - from control to loss of control

Aim.  This paper is a report of a study to describe situations influencing next-of-kin caregivers’ ability to manage palliative care in the home.

Background.  Palliative home care often involves major resources from next-of-kin, municipal and county personnel. Next-of-kin caregivers’ situation is depicted as so demanding and exhausting that it can affect their mental health and limit their ability to continue as a caregiver.

Thu, 07/20/2017 - 15:12

A review and commentary of the social factors which influence stroke care: issues of inequality in qualitative literature

Stroke is the third most common cause of death in the UK and a major cause of adult disability. Stroke services have long been criticised for being deficient and there is evidence that some aspects of care provision vary across different population groups. While there is information about the patterns of service provision, questions remain about processes which might underlie these variations.

Thu, 07/20/2017 - 15:12

'The living death of Alzheimer's' versus 'Take a walk to keep dementia at bay': representations of dementia in print media and carer discourse

Understanding dementia is a pressing social challenge. This article draws on the ‘Dementia talking: care conversation and communication’ project which aims to understand how talk about, and to people living with dementia is constructed. In this article I draw on the construction of dementia manifest in two data sets – a corpus of 350 recent UK national newspaper articles and qualitative data derived from in-depth interviews with informal carers. These data were analysed using a thematic discursive approach. A ‘panic-blame’ framework was evident in much of the print media coverage.

Thu, 07/20/2017 - 15:12

Respite in palliative care: a review and discussion of the literature

Family caregivers, who are patientsflrelatives and friends (hereafter called carers), play a significant and arguably most important role in enabling patients to make choices about their place of care during advanced disease and in the terminal phase. Relatively little attention has been directed towards identifying the needs of carers who find themselves in this position and what interventions (if any) might best support them in continuing to provide care to the patient during the illness and dying trajectory.

Thu, 07/20/2017 - 15:12

A comprehensive assessment of family caregivers of stroke survivors during inpatient rehabilitation

Purpose: Stroke caregivers have been identified as a group at high risk for poor outcomes as a result of the suddenness of stroke and a potentially high level of care needed due to significant functional limitations of the patient. However, there is little research on the assessment of family members who will assume the caregiving role prior to patient discharge from rehabilitation.

Thu, 07/20/2017 - 15:12

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