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Youth South Asians with learning disabilities: still socially excluded?

This paper report on a study undertaken in Glasgow of young South Asian people with learning disabilities and their carers, and explores the extent to which they are socially excluded. Although there is an increasing political emphasis on the inclusion of people with learning disabilities, the families concerned continue to experience isolation, both socially and in terms of service provision. Access to service is often problematic, because of linguistic and cultural barriers and families appear to be reluctant to use day centres.

Thu, 07/20/2017 - 15:14

Access to health care for carers: barriers and interventions: report for the National Co-ordinating Centre for NHS Service Delivery and Organisation R & D (NCCSDO)

Background The General Household Survey 2000 shows that approximately 6.8 million adults in Britain provide care to sick or disabled relatives or friends, or the elderly. Carers report high levels of stress, anxiety and depression, as well as general health problems and physical injuries such as strained backs associated with lifting. The more demanding care, the less likely it is that carers will have time to attend to their own health care needs.

Thu, 07/20/2017 - 15:14

What will people think

Outlines a research project undertaken in the Dartford and Gravesham area of north west Kent to explore the service-related needs of Asian older people with dementia and their carers. The study was conducted from February 2002 to January 2004, based at a local dementia care charity, and funded by the Mental Health Foundation. Qualitative approaches were used to collect data about existing services and the views and perceptions of key stakeholders including: 7 GPs, 32 health professionals and service managers, 7 carers and 230 members of the local Asian community.

Thu, 07/20/2017 - 15:12

Carers' journeys

The material on this DVD reflects the views of a multi-ethnic group of carers and community members in Wolverhampton who meet regularly to share their experiences and hope for the future. Some issues for discussion are also suggested in the accompanying leaflet, including access to appropriate services, improving communication and better recognition of the role of carers.

Thu, 07/20/2017 - 15:12

In sickness and in health: a survey of 3,400 UK carers about their health and well-being

There are an estimated 6.4 million people in the UK1 currently caring for a child, friend, neighbour, partner or parent or a combination of these. Carers look after family and friends who are disabled, frail or ill. They work alongside professionals, volunteers, care homes, special schools and community groups often caring for people in their own home. The hours of care that they provide for ill, frail or disabled people often comes at a cost to their own health and well-being. The impact on a carers’ health and well-being, finances and relationships cannot be underestimated.

Thu, 07/20/2017 - 15:12

Supporting the supporters

A recent study commissioned by the NHS Service Delivery and Organisation research and development programme (SDO) aimed to identify gaps in existing knowledge about the need for services to support mental health carers and what was meant by effectiveness and efficiency in these services. Consultation with key stakeholders was a major part of the study. This article focuses on the main findings of the consultation. Flexibility and responsive were identified as key characteristics of the ideal support service.

Thu, 07/20/2017 - 15:11

Family carers' experiences using support services in Europe: empirical evidence from the EUROFAMCARE study

This article explores the experiences of family carers of older people in using support services in six European countries: Germany, Greece, Italy, Poland, Sweden, and the UK. Following a common protocol, data were collected from national samples of approximately 1,000 family carers per country and clustered into comparable subgroups to facilitate cross-national analysis. Carers' use of available support services is limited across Europe but is considerably higher in Germany, Sweden, and the UK than in Poland, Greece, and Italy.

Thu, 07/20/2017 - 15:11

Direct payments: the information deficit

Direct payments can now be made to older people. But a 12-month research project has revealed that service users, carers and junior staff still have little knowledge of them. The authors of the Shield research team, Anglia Polytechnic University, and Tower Hamlets Coalition of Disabled People explain that service users are cautiously optimistic about what direct payments offer them but are anxious about the practicalities.

Thu, 07/20/2017 - 15:11

Cultural differences limit carers

Suggests that language barriers may prevent Bangladeshi informal carers from accessing statutory services in South Wales. Suggestion that informal carers in Bangladeshi communities see their role as an "honor and a privilege," but have limited access to statutory services, often because of language problems; Health and social needs of people caring for dependent adults within a Bangladeshi community.

Thu, 07/20/2017 - 15:11

Paths to personalisation in mental health: a whole system, whole life framework

This is a revision of the framework first published in 2010, and is a whole system guide that provides information, guidance and signposts in respect of personalisation and personalised services and support for people with mental health needs. The framework is organised in 12 broad sections: person-centred systems and approaches; information and advice.

Thu, 07/20/2017 - 15:11