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Alzheimers disease

Estimating the costs of informal care for people with Alzheimer's disease: methodological and practical challenges

In Alzheimer's disease and related disorders estimates of informal care costs have been neglected and when included in cost of illness studies, valuations have been highly variable. This illustrates the need to standardise the methodology not only for valuing formal, but also informal care costs. Methods used for valuing informal care are identified, together with theoretical and practical challenges in measurement.

Thu, 07/20/2017 - 15:15

Family carers' accounts of general practice contacts for their relatives with early signs of dementia

The role of families in supporting people with dementia is widely acknowledged in literature and UK government policy. The role of general practice in ensuring early and effective support for people living with mental health problems including dementia is also enshrined in UK policy. As part of a larger study, a total of 122 carers were asked to rate predefined aspects of the primary care response. For some responses they were also asked to provide a reason for their rating.

Thu, 07/20/2017 - 15:15

Caregiver burden in family carers of people with dementia with Lewy bodies and Alzheimer's disease

Objective: To characterise the differences in caregiver distress between carers of people diagnosed with dementia with Lewy bodies (DLB) and people with Alzheimer's disease (AD), with a view to differentiating and improving support for caregivers. Methods: This study is a part of two larger Norwegian studies, DemVest (n = 265) and The Norwegian Dementia Register (n = 2220), with data from caregivers and people diagnosed with AD (n = 100) and DLB (n = 86) between 2005 and 2013. The average age was 74.9 years (SD = 7.8).

Thu, 07/20/2017 - 15:15

Patterns of formulaic language in Alzheimer's disease: implications for quality of life

Purpose – This paper aims to demonstrate how fundamental social and psychological drivers can affect the language used by people with Alzheimer's disease (AD) and their carers.

Thu, 07/20/2017 - 15:15

A strengths perspective in working with people with Alzheimer’s disease

This article presents a case study contrasting the disease orientation and strengths perspective, and describing how strengths perspectives can be used to utilize the assets and strengths that each person with dementia retains in order to improve both the quality of care and the quality of life for the person with demetia and his or her family carers.

Thu, 07/20/2017 - 15:14

Dementia risk reduction: it's never too early, it's never too late

There are 850,000 people living with dementia in the United Kingdom today, and there is currently no diseasemodifying intervention available for any form of the condition. Costs from dementia to the UK economy are currently estimated to be over L24 billion a year and approximately 700,000 people are informal carers for people who have dementia. While age is the biggest risk factor for developing dementia, the condition is not an inevitable part of ageing. Other factors such as medical history, lifestyle and genetics may also contribute to the risk of developing dementia.

Thu, 07/20/2017 - 15:14

Good days and bad days: the lived experience and perceived impact of treatment with cholinesterase inhibitors for Alzheimer's disease in the United Kingdom

Although heralded as a major breakthrough in the treatment of Alzheimer’s disease the experience and impact of using cholinesterase inhibitors (CHEIs) from the perspective of people with Alzheimer’s disease has not been widely reported. This qualitative study reports the lived experience of CHEI users and the perceived impact of the treatment. The views and experiences of 12 older people referred for memory problems or receiving treatment and 11 associated family carers were obtained using a combination of semi-structured interviews and focus groups.

Thu, 07/20/2017 - 15:14

Survival of persons with Alzheimer's disease: caregiver coping matters

Purpose: Although persons with Alzheimer's disease (AD) require increasingly more assistance with activities of daily living as their disease progresses, the caregiving environment has received little attention as a source of predictors of their survival time.

Thu, 07/20/2017 - 15:14

The role of a dementia trailblazer

Colin Dugdale, BSc, RMN, RGN, dementia trailblazer, NHS Executive North West. As a community mental health nurse team leader I was seconded to the NHS Executive North West for the role of dementia trailblazer to develop the Admiral Nurse Service in the north-west of England.

Thu, 07/20/2017 - 15:14

Awareness of social and emotional functioning in people with early-stage dementia and implications for carers

Objectives: This study explores the extent to which awareness of social and emotional function is reduced in early-stage dementia and whether this relates to the quality of life of the person with dementia (PwD), the quality of the relationship between the PwD and carer and carer stress.

Thu, 07/20/2017 - 15:14