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Alzheimers disease

Korean-American family postcaregivers on dementia caregiving: a phenomenological inquiry

The purpose of this article is to understand dementia caregiving and postcaregiving experience from the Korean-American family caregiver perspective. In this transcendental phenomenological study, I analyzed both in-depth interviews from 8 caregivers and field notes with the procedure of Moustakas' (1994) modification of the Van Kaam method.

Thu, 07/20/2017 - 15:13

Support for family carers for an elderly person at home: a systematic literature review

Family carers are a major source of help and assistance to the persons they provide care for. They are also major contributors to the welfare system, balancing the national health care expenditure. Increasing attention, in research as well as government policy, is being paid to their role as informal caregivers. Support to family carers seems to be a new ‘buzzword’ in Swedish Government policy. However, supporting family carers may prove to be a more complex endeavour than one initially might be led to believe.

Thu, 07/20/2017 - 15:13

A multi-method evaluation of an independent dementia care service and its approach

Changes to approaches in dementia care and subsequent services over the last decade have meant that quality of care for people with dementia and their carers has undoubtedly improved. However, few in-depth dementia service evaluation studies are documented. Those that are tend to focus on traditional evaluation measures such as length of stay or functional improvement, or they concentrate on the perspectives of carers. This study used multiple methods within Fourth Generation Methodology to evaluate (SPECAL) Specialized Early Care of Alzheimer's, a dementia care service and approach.

Thu, 07/20/2017 - 15:13

Early onset dementia: living at home with nursing support

In this video we meet Jim and Janet Swift, both keen travellers until Janet was diagnosed with dementia at the age of 58. Jim's account of their experience illustrates the widespread effect of a very rapid deterioration, and explores the sense of loss and loneliness that can be part of the caring role. His account also highlights the need for skilled, experienced support for carers – in this case provided by an Admiral Nurse - together with access to regular breaks from the caring role.

Thu, 07/20/2017 - 15:12

Trajectories of quality of life in early-stage dementia: individual variations and predictors of change

Background: Little evidence is available about how quality of life (QoL) changes as dementia progresses.

Objectives: We explored QoL trajectories over a 20-month period and examined what predicted change in QoL.

Thu, 07/20/2017 - 15:12

Life with two hats: part 3

Part 3 of a video on carers of people with dementia.The video highlights the different roles a carer plays (or different hats). They need to be compassionate when looking after the physical and mental health needs of the person they are caring for. They also need to be a warrier in order to battle to find out what services and benefits are available.

Thu, 07/20/2017 - 15:12

Planning care for people with dementia

A study by the National Institute for Social Work suggests that estimates can be made about the length of time that a person with dementia will need community and long term care services. This can be done based on an assessment of the severity of dementia at the time of the community care assessment. The author highlights the need for an appraisal of local old age psychiatry services and eligibility criteria, and the importance of monitoring carers' ability and willingness to provide care.

Thu, 07/20/2017 - 15:12

What is elder abuse - who decides?

Objectives: To test the hypothesis that family and professional caregivers have different views about what constitutes elder abuse.

Design: A vignette was given to family and professional carers. They were asked to rate 13 management strategies for behavioural difficulties in a person with dementia on a Likert scale ranging from good idea to abusive. Some of the strategies were abusive according to the Department of Health's ‘No Secrets’ definition.

Thu, 07/20/2017 - 15:12

What causes problems in Alzheimer's disease: attributions by caregivers. a qualitative study

Objective: To gain insight into caregivers' understanding of the causes of behaviours they find problematic in people with Alzheimer's disease in order to inform the development of educational strategies.

Thu, 07/20/2017 - 15:12

Selfhood in younger onset dementia: transitions and testimonies

Younger people with dementia and their carers are an overlooked population for research, policy and practice attention. In this study, data were collected from both the United States and the UK in order to explore the meaning and construction of selfhood and identity.

Thu, 07/20/2017 - 15:12