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Alzheimers disease

Dementia diary: a personal and professional journal

This article is not traditional social work writing, because it is in the form of a memoir. It offers a window into lived experience, from which most professional writing is more distant. It explores the last year of life of an elderly woman, seen through the eyes of her daughter-in-law, who is a social worker and social work educator. The article chronicles the day-to-day experiences of progressive memory loss and the challenges of caregiving. Social work can develop similar narratives of other life experiences that can increase its practitioners' understanding and wisdom.

Thu, 07/20/2017 - 15:12

Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers

This study aimed to compare care recipient and caregiver perceptions of quality of life in patients (QoL-p) with Alzheimer's disease (AD) and to identify associated factors, and the concordances-discrepancies. A cross-sectional analytic study of 236 patients and their carers was carried out using the Quality of Life in Alzheimer's Disease (QoL-AD) scale, socio-demographic data and clinical examination. Patients scored the QoL-AD more favourably than did caregivers. Cognitive deterioration did not affect the perception of QoL-AD.

Thu, 07/20/2017 - 15:11

Do patients diagnosed with Alzheimer's disease benefit from a psycho-educational programme for family caregivers? A randomised controlled study

Objective: The Aide dans la Maladie d'Alzheimer (AIDMA) study was conducted to determine whether a psycho-educational programme (PEP) for primary caregivers in addition to standard anti-dementia drugs for patients improves caregivers' psychological condition and patients' activities of daily life.

Thu, 07/20/2017 - 15:11

Support network transformations in the first stages of the caregiver's career

The purpose of this article is to propose a method to facilitate analysis of the processes involved in the transformation of support networks for caregivers of persons with dementia. The authors are particularly interested in the preliminary phases of the caregiver's career: the initial period ranging from the first manifestations of dementia to the confirmation of a diagnosis. This method combines the social network approach with narratice analysis.

Thu, 07/20/2017 - 15:11

Alzheimer's disease in real life - the dementia carer's survey

Background: Informal care from relatives provides the foundation of care for people with Alzheimer's disease (AD). It is important to understand the conditions under which carers perform their, often neglected, task. The dementia carer's survey aimed to identify carers' needs, differences between countries with regard to dementia care and the level of satisfaction of carers with utilised services.

Thu, 07/20/2017 - 15:11

Caring for others: internet health care support intervention for family caregivers of persons with Alzheimer's, stroke, or Parkinson's Disease

This Canadian study aimed to emulate face-to-face psychosocial support group process in an Internet videoconferencing environment and explore the benefits for 34 family caregivers of persons with neurodegenerative disease. Caregivers were provided with computer equipment and trained to access a password-protected Web site. Using videoconferencing software, each group of 6 members met with a facilitator online weekly for 10 weeks. Each caregiver was interviewed at 6-month follow-up.

Thu, 07/20/2017 - 15:11

Who cares? Information and support for the carers of people with dementia

This booklet for carers gives information about dementia, caring for someone with dementia and the help available to carers. Original edition researched and written by Maggie Jee and Liz Reason.  This edition has been developed with the valuable assistance of Help the Aged, Age Concern (England), the Alzheimer's Society, The Princess Royal Trust for Carers, Dementia Voice and the South London and Maudsley NHS Trust. Please note that there may be changes in the benefits system and in social services after publication of this booklet, so you are advised to check benefits and services issues w

Thu, 07/20/2017 - 15:11

Health status and work burden of Alzheimer patients' informal caregivers : comparisons of five different care programs in the European Union

BACKGROUND: In 1998, a research study was conducted to compare existing programs in the European Union providing both care to people with senile dementia of the Alzheimer type, and support to their informal caregiver. METHOD: Five programs were selected in seven centres. Home social services (Denmark), Day centres (Germany), Expert Centres (Belgium, Spain), Group Living/Cantou (Sweden, France), Respite hospitalization (France). In each centre, 50 patients were randomly selected. The questionnaire addressed informal caregivers (or referents).

Thu, 07/20/2017 - 15:11

Life with two hats: part 2

Part 2 of a video by Viviana Fain-Binda for carers of people with dementia. In the video carers of people with dementia talk about the importance of finding out about and accessing services available. It also stresses the benefits of joining local support groups to find out information and provide support.

Thu, 07/20/2017 - 15:10

Night respite care: relieving the burden on people caring for relatives with dementia

There are few published reports of night-time respite care for people with dementia. The authors review the literature on effectiveness of respite care and report on an audit of the Bexley ACE Night Centre. Night-time respite care is well received by carers who say that it helps them cope better and for longer with relatives who have dementia. Many carers say they would be willing to pay for the service if it were not free. They argue that models of very brief night-time respite should be developed further and researched more fully as they meet an important need of carers. 

Thu, 07/20/2017 - 15:10