Alzheimers disease

Younger people with dementia and their carers are an overlooked population for research, policy and practice attention. In this study, data were collected from both the United States and the UK in order to explore the meaning and construction of selfhood and identity.

This article is not traditional social work writing, because it is in the form of a memoir. It offers a window into lived experience, from which most professional writing is more distant. It explores the last year of life of an elderly woman, seen through the eyes of her daughter-in-law, who is a social worker and social work educator. The article chronicles the day-to-day experiences of progressive memory loss and the challenges of caregiving. Social work can develop similar narratives of other life experiences that can increase its practitioners' understanding and wisdom.

This study aimed to compare care recipient and caregiver perceptions of quality of life in patients (QoL-p) with Alzheimer's disease (AD) and to identify associated factors, and the concordances-discrepancies. A cross-sectional analytic study of 236 patients and their carers was carried out using the Quality of Life in Alzheimer's Disease (QoL-AD) scale, socio-demographic data and clinical examination. Patients scored the QoL-AD more favourably than did caregivers. Cognitive deterioration did not affect the perception of QoL-AD.

Objective: The Aide dans la Maladie d'Alzheimer (AIDMA) study was conducted to determine whether a psycho-educational programme (PEP) for primary caregivers in addition to standard anti-dementia drugs for patients improves caregivers' psychological condition and patients' activities of daily life.

The purpose of this article is to propose a method to facilitate analysis of the processes involved in the transformation of support networks for caregivers of persons with dementia. The authors are particularly interested in the preliminary phases of the caregiver's career: the initial period ranging from the first manifestations of dementia to the confirmation of a diagnosis. This method combines the social network approach with narratice analysis.

Background: Informal care from relatives provides the foundation of care for people with Alzheimer's disease (AD). It is important to understand the conditions under which carers perform their, often neglected, task. The dementia carer's survey aimed to identify carers' needs, differences between countries with regard to dementia care and the level of satisfaction of carers with utilised services.

This Canadian study aimed to emulate face-to-face psychosocial support group process in an Internet videoconferencing environment and explore the benefits for 34 family caregivers of persons with neurodegenerative disease. Caregivers were provided with computer equipment and trained to access a password-protected Web site. Using videoconferencing software, each group of 6 members met with a facilitator online weekly for 10 weeks. Each caregiver was interviewed at 6-month follow-up.

This booklet for carers gives information about dementia, caring for someone with dementia and the help available to carers. Original edition researched and written by Maggie Jee and Liz Reason.  This edition has been developed with the valuable assistance of Help the Aged, Age Concern (England), the Alzheimer's Society, The Princess Royal Trust for Carers, Dementia Voice and the South London and Maudsley NHS Trust. Please note that there may be changes in the benefits system and in social services after publication of this booklet, so you are advised to check benefits and services issues w

BACKGROUND: In 1998, a research study was conducted to compare existing programs in the European Union providing both care to people with senile dementia of the Alzheimer type, and support to their informal caregiver. METHOD: Five programs were selected in seven centres. Home social services (Denmark), Day centres (Germany), Expert Centres (Belgium, Spain), Group Living/Cantou (Sweden, France), Respite hospitalization (France). In each centre, 50 patients were randomly selected. The questionnaire addressed informal caregivers (or referents).

Part 2 of a video by Viviana Fain-Binda for carers of people with dementia. In the video carers of people with dementia talk about the importance of finding out about and accessing services available. It also stresses the benefits of joining local support groups to find out information and provide support.