carers

Unsung heroes, hearts of gold and other cliches get in the way of the real message about carers. Carers look after family, friends or partners in help because they are ill, frail or have a disability. The care they provide is unpaid seven days a week, 365 days of the year.

Design/methodology/approach – The approach is to discuss current guidance and practice, and to offer academic criticism and explanation.

Hospice nurses are finding new ways to care for bereaved people, reports Jennifer Trueland

Bereavement care is a vital but under-funded part of palliative care services, and there is growing evidence that people who have lost a loved one are at increased risk of serious illness. The Hospice of St Francis in Berkhamsted is providing innovative care for families of patients before and after death. ‘Life-changing’ initiatives include cookery classes and pony rides.

Over the last two years we have been working together to take forward the National Carers' Strategy, published in 2008, in the context of more personalised support and sustained independence for carers and service users. This paper is the third in a sequence of short reviews designed to stimulate debate and improve the support for carers. At a time when we face many challenges around resources it is doubly important that we keep our sights firmly on the improved outcomes that can be secured through early intervention and preventative support. The review contains five key messages.

This paper reports a welfare rights intervention for carers of dying people through seminars to help them organise family finances to deal with additional costs of the final illness, funeral costs and reconstruction of family finances after death. Seminars on financial affairs were provided to 103 carers and service users, and were evaluated by questionnaires. The seminars were very positively received by attenders, who felt better informed, but were not necessarily more confident in dealing with financial problems.

Reports on a study which took place at a memory clinic in the south west of England to investigate the reasons why people with dementia and their carers do, and do not, stay physically active. The study also wanted to find out which activities would be acceptable and sustainable for people with dementia and their carers. Five people living with Alzhiemer's Disease and their five spouse carers were interviewed using semi-structured interviews.

Based on young people's own accounts, this DVD and toolkit gives care workers a valuable opportunity to reflect on and improve practice.

BACKGROUND: In European countries, knowledge about availability and utilization of support for informal caregivers caring for older persons (≥65 years) with dementia (PwD) is lacking. To be able to evaluate and develop the dementia support system for informal caregivers to PwD, a survey of European support systems and professionals involved is needed. The aim of this study was to explore support for informal caregivers to PwD in European countries.

I describe the development of a group in North London that aimed to increase the involvement of carers in the development and monitoring of mental health services across the borough. I enabled the carers to evaluate their experiences of the group using a participatory action research model. The evaluation was divided into two phases. Phase 1 focused on how the carers developed effective processes to facilitate the individuals in the group to represent not only their experiences but those of the collective.