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User views

‘Stroppy’ or ‘confident’? Do carers and professionals view the impact of transition support on young people differently?

The study examined the effects of transition employment support to two cohorts of young people who were in their last year in school or college in 2005/2006 and 2006/2007. This paper reports the views of carers, teachers and support workers of the impact this additional support made to the young people. Analysis of the data reveals a difference between the views of carers and those of professionals.

Thu, 07/20/2017 - 15:09

Learning disability nursing: user and carer perceptions

It is frequently asserted that the views of patients or service users should inform the structure and delivery of health and social care services. In the UK, patient participation, the expertise of service users and user involvement in the design and outcomes of research have been repeatedly emphasized as producing services which are more responsive, better coordinated and less stigmatizing. The NHS has highlighted the importance of involving service users in education and training. This article reports on user and carer views about learning disability nursing.

Thu, 07/20/2017 - 15:09

An evaluation of palliative care services in the community

To develop palliative care services it is important to evaluate local services and identifiy any gaps in provision. In this study a mapping exercise and a postal questionannaire were used to attempt to canvass the views of patients and carers using a service in Gloucestershire. Reports on the methodology and the findings of the questionnaire.

Thu, 07/20/2017 - 15:09

Carers' perspectives on their needs and local authority occupational therapy practice

Unpaid family carers are the main providers of care for older people in the community. Local authority occupational therapists are required by law to assess the needs of such carers in their work, targeting their interventions to support carers' roles. This small qualitative study identified the perceived needs of nine family carers of adults with physical disabilities in one English county, exploring the extent to which these needs were met by local authority occupational therapists.

Thu, 07/20/2017 - 15:09

Are persons with cognitive impairment able to state consistent choices?

Purpose: This study examined the decision-making capacity of persons with cognitive impairment with respect to their everyday care preferences and choices.

Thu, 07/20/2017 - 15:09

A personal approach: to patients and carers

A short video aimed at patients and carers which features a number of professionals, patients and carers, who talk about how a more personalised approach to care can improve outcomes.

Thu, 07/20/2017 - 15:09

User and carer involvement in mental health services: from rhetoric to science

User or carer involvement is often seen as intrinsically worth while; but if such involvement is a good thing in itself, it would not matter whether changes resulted from it. However, most people argue for user or carer involvement because they think some useful change will follow as a consequence. Being involved can benefit users or carers both personally (for example, by empowering them or increasing their social contacts) and practically (for example, by enabling them to earn money or learn new skills).

Thu, 07/20/2017 - 15:09

Navigating health and care: living independently with long term conditions: an ethnographic investigation: interim findings

An evaluation exploring the lives of older people living with multiple long term conditions, assessing how well the health and care system is meeting their needs. The evaluation heard the views of 36 patients, family members and carers in order to gain an insight into their experiences of living with and managing their long term conditions and the care they receive.

Thu, 07/20/2017 - 15:09

Contrasting perceptions of health professionals and older people in Australia: what constitutes elder abuse?

Objectives: To explore the perceptions of family carers, older people and health professionals in Australia about what constitutes elder abuse.

Methods: The Caregiving Scenario Questionnaire (CSQ) was disseminated to health professionals from two metropolitan hospitals, older volunteers and carers of older people with dementia recruited for other studies.

Thu, 07/20/2017 - 15:09

Understanding the impact of an Assertive Outreach Team on couples caring for adult children with psychosis

Carers play an essential role in the lives of people suffering from mental health problems. Caring is very often a relational activity carried out by family members. Assertive Outreach (AO) services ought to be particularly well placed to support carers, but their impact upon families is not well understood. We set out to understand the intervention of AO services from a family perspective, and in particular to explore its meaning from the perspectives of pairs of carers. Three pairs of carer-parents participated in six individual open-ended interviews.

Thu, 07/20/2017 - 15:09

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