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User views

Towards the creative management of risk: perceptions practices and policies

The present paper examines the importance of risk when supporting individuals with learning disabilities. It uses data from a small research project designed to examine the perceptions of risk held by users, carers and professionals, as well as the risk policies of agencies. Risk is an important issue in the provision of support. The service users in the present study saw risk primarily in terms of hazards. The carers were concerned about hazards and harm, but recognized the need for risk-taking. The professionals emphasized the importance of reasonable risk-taking.

Thu, 07/20/2017 - 15:14

Research into the Mental Health Act: a qualitative study of the views of those using or affected by it

Background : Britain's existing mental health legislation was introduced over 15 years ago. Since then, there has been considerable reorganisation of mental health care services but little research into the use of the Act in routine practice. Modernising Mental Health Services (1998) asserts that mental health legislation will be revised. Aim : The study investigates opinions about the strengths and weaknesses of Parts II and X of the Mental Health Act (1983) of those affected by it.

Thu, 07/20/2017 - 15:14

‘If they’re helping me then how can I be independent?’ The perceptions and experience of users of home-care re-ablement services

Home-care re-ablement is a short-term, intensive service that helps people to (re-) establish their capacity and confidence in performing basic personal care and domestic tasks at home, thereby reducing needs for longer term help. Home-care re-ablement is an increasingly common feature of English adult social care services; there are similar service developments in Australia and New Zealand. This paper presents evidence from semi-structured interviews conducted in early 2010 with 34 service users and 10 carers from five established re-ablement services in England.

Thu, 07/20/2017 - 15:13

Care home design for people with dementia: what do people with dementia and their family carers value?

Objectives: To report on the views of people with dementia who live in care homes and their family carers on aspects of design that are important to them, and discuss these in relation to developing physical care environments that respond to the wishes of people with dementia and their family carers.

Thu, 07/20/2017 - 15:13

Patient and carer perceptions of case management for long-term conditions

Nurse-led case management programmes have become increasingly popular over the last 15 years. Countries such as the USA, Canada, Sweden and the Netherlands have long running case management programmes in place for frail elderly people. The Department of Health in England has recently introduced a 'community matron' role to provide case management to patients with highly complex long-term conditions; a group that is predominantly comprised of elderly people.

Thu, 07/20/2017 - 15:13

The important things in life

Decisions made on behalf of people with a learning disability and their families are often made without any input from the people they affect the most. Mencap's 'Listen and Learn' consultation programme was developed to find what is important to people with learning disabilities. The consultation used surveys, focus groups and interviews with people with learning disabilities, their family members or carers, Mencap members of staff and leaders of local Mencap groups.

Thu, 07/20/2017 - 15:13

Consulting service users: the Stroke Association Home Therapy Project

In 1999, the Stroke Association set up a project to promote home-based occupational therapy for patients who had had a stroke and been discharged home from hospital. As part of the service evaluation, focus groups for service users and carers were set up in two of the sites to consult users about the changes in their quality of life during the period of the home therapy. A total of 11 service users and 9 carers attended the groups, representing 30% of the service users and 27% of the carers involved in the project.

Thu, 07/20/2017 - 15:13

Working lives: the role of day centres in supporting people with learning disabilities into employment

Summarises a research project jointly commissioned by the Department for Work and Pensions and the Department of Health, which explored how day centres are addressing employment, the relationships between day centres and employment related organisations, and the views and experiences of those who attend day centres and their carers. The research was undertaken to understand current provision and how employment opportunities for people with learning disabilities can be extended.

Thu, 07/20/2017 - 15:13

Up close and personal: a qualitative study exploring the lived experience of older carers

This study explored the experiences of informal carers who were aged 65 years and over. It has been estimated that 15 per cent of those aged 65 or over provide some form of informal care in England. Despite a growing literature on the involvement of older people in research, there is a paucity of literature on the involvement of older carers. In this study, older carers were identified via a General Practice (GP) register in one urban medical practice. Data was collected through a series of focus groups, which were transcribed and analysed using thematic analysis.

Thu, 07/20/2017 - 15:13

Service users’ involvement in the development of a maintenance cognitive stimulation therapy (CST) programme: a comparison of the views of people with dementia, staff and family carers

This study reports on the process of developing a maintenance programme manual following the Medical Research Council guidelines representing the ‘phase I’ or modelling. This study uses an inductive thematic analysis approach to examine user perceptions on the maintenance cognitive stimulation therapy (CST) programme. Three focus groups were carried out with people with dementia, three with staff, and three with family carers of people with dementia. In total 17 people with dementia, 13 staff and 18 family carers took part in separate focus groups.

Thu, 07/20/2017 - 15:13

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