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User views

Copying letters to service users with learning disabilities: opinions of service users, carers and professionals working within learning disability services

The NHS Plan, Department of Health (2000) made a commitment that patients should be able to receive copies of clinicians’ letters about them as a right in order to improve communication and enable patients to participate in their care. In South Gloucestershire, the opinions of local service users with learning disabilities, their carers, and professionals working within learning disability services about this issue were sought using questionnaires and focus groups in order to identify and then develop good practice.

Thu, 07/20/2017 - 15:19

A comparison of carers needs for service users cared for both in and out of area

Purpose – This paper describes an ongoing process of engagement with carers of people with intellectual disabilities currently being monitored by an out of area service for both carers of people placed both in area and out of area within a local Mental Health Learning Disabilities team in South London.

Thu, 07/20/2017 - 15:19

SCIE research briefing 12: involving individual older patients and their carers in the discharge process from acute to community care: implications for intermediate care

This web-based briefing provides a concise summary of the research and policy literature into the means, benefits and difficulties of involving patients in the planning of discharge to community or intermediate care. It also considers the role of carers in this process, as well as what happens when an older person’s ability to communicate their preferences in these matters is affected by dementia, language difficulties, or an unwillingness or reluctance to express preferences about the provision of care.

Thu, 07/20/2017 - 15:19

The experience of caring for a partner with young onset dementia: how younger carers cope

The coping strategies adopted by six carers to adapt to changes in their relationship with their partner with young onset dementia are explored. All were recruited from the north west of England and interpretative phenomenological analysis was used to analyse the data.

Thu, 07/20/2017 - 15:19

Making it clear and relevant: patients and carers add value to studies through research document reviews

Purpose – The National Institute of Health Research MHRN established the Feasibility and Support to Timely recruitment for Research (FAST-R) service in 2011, to provide rapid patient and carer feedback on research documents, prior to ethical review. The aims were to improve the feasibility of studies, to speed up regulatory processes and enhance study set up and completion. The purpose of this paper is to explore whether and how the FAST-R service benefits the review process.

Thu, 07/20/2017 - 15:19

Cultural adaptation of mental health measures: improving the quality of clinical practice and research

The need for accurate information about the mental health problems of multicultural communities requires valid measures of mental health for use in a number of languages and cultural contexts. Measures of psychopathological symptoms leading to a diagnosis have been especially criticised for their universal application, without attention to their limitations across cultures. Yet, measures are crucial to assess recovery and the performance of services, and to take account of carer and user views.

Thu, 07/20/2017 - 15:19

Interprofessional and inter-agency collaboration (IPIAC) e-learning course - An introduction to interprofessional and inter-agency collaboration

One of a series of e-learning resources which explore the nature of interprofessional and inter-agency collaboration (IPIAC) and improving collaborative practice. The interactive resource uses audio, video and interactive technology to examine the nature of collaboration, why it is important, its purposes and its growing place in policy and practice. Those using care services and carers also talk about their experiences of effective and ineffective collaboration.

Thu, 07/20/2017 - 15:18

Voices from the shadows: stories from people living with dementia

This training resource uses series of monologues from people with dementia and their carers to promote discussion and increase awareness of the problems they face. The monologues are brought to life by the actors Godfrey Jackman and Pam Lyne, using the words of the writers or speakers. A CD-ROM includes a set of facilitators' notes based on the Alzheimer's Society's interpretation of the films and their relevance to the support of people with dementia and their carers.

Thu, 07/20/2017 - 15:18

Family voices: life for family carers of people with intellectual disabilities in Ireland

Background: Families in Ireland remain the main providers of support for people with Intellectual disabilities, and the aim of this study was to map their life experiences whilst involving their family members as co-researchers.

Materials and Method: This qualitative, participatory study involved 10 focus groups attended by 70 parents and siblings of people with intellectual disabilities. Data were analysed using thematic analysis.

Thu, 07/20/2017 - 15:18

In our own words

Looks at what user consultation and empowerment mean to service users and carers themselves.

Thu, 07/20/2017 - 15:18

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