English

This article summarises PhD research undertaken by the author and provides readers with the carer assessment tools validated in the study. [Journal abstract]

Results of the UK’s largest ever survey of people with Parkinson’s and carers

Increasingly there is greater emphasis on user/carer involvement in the delivery of mental health care. There are five levels of participation from none at all to partnership and optimal involvement. A two-year pilot steering group was established by a health authority in December 2000 and criteria for independent evaluation agreed. These included the context, data collection, analysis and report, and recommendations based on the findings to increase user/carer involvement in all aspects of mental health service delivery.

This article suggests that relational approaches and carer-centred practice in mental health and other services might alleviate some of the burden on the health – both physical and mental – experienced by informal carers. Unhelpful staff attitudes and poor communication are barriers to effective engagement between professionals and carers.

This paper examines the views of carers who have received a carer’s assessment following the introduction of the Carers (Equal Opportunities) Act 2004. The Act ensured for the first time that a carer’s desire to take part in paid work, education or training, and leisure opportunities was considered. Semi-structured interviews were undertaken with carers to illuminate their lived experiences.

Aim.  The aim of this study was to review research literature over the past 10 years on respite care for people affected by severe mental illness; and identify key implications for nursing practice in provision of respite care for family caregivers of people with severe mental illness.

The purpose of this phenomenological study was to describe the experience of caring for a family member with Alzheimer’s disease or related disorder (ADRD) living at home among a diverse sample of 103 family caregivers. The study involved secondary analysis of in-depth transcribed interview data using van Kaam’s rigorous four phase, 12-step psychophenomenological method. A total of 2,115 descriptive expressions were categorized into 38 preliminary structural elements. Eight essential structural elements emerged from an analysis of the preliminary structural elements.

Care of a person with mental illness involves multiple burdens, possibly leading to burnout. This study compares partners of persons with schizophrenia and depression with nursing staff based on dimensions of burnout. Nursing staff and partners of patients with schizophrenia or depression were consecutively recruited from psychiatric hospitals and interviewed with the Maslach Burnout Inventory. No significant differences were found in the three dimensions of burnout (emotional exhaustion, depersonalization, and personal accomplishment) for the two groups of caregivers.

Caregiving is a women's health issue globally, as many more women than men are informal caregivers. Caregiving related to gender role socialization, burden, and economic and health consequences has been discussed in the literature. Together this body of work demonstrates some positive but mainly negative consequences to the health and economic circumstances of women.

Around 6 million adults in Britain help and support family, partners or friends who are ill, frail or disabled. The care they provide is unpaid. They include over 1.5 million carers who devote at least 20 hours per week to their caring activities. However, most adults provide that level of care at some point in their lives. The UK, Scottish Executive and Welsh Assembly Governments have adopted strategies that aim to support carers in their caring role and enable them to continue caring for as long as they wish to do so.