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Burden of caring: risks and consequences imposed on caregivers of those living and dying with advanced heart failure

Purpose of review: To summarize the latest research on the risks and consequences of the burden that may be imposed on informal carers of persons living and dying with advanced heart failure.

Recent findings: A systematic search in PubMed over the period 2013?2014 ultimately revealed 24 original articles included in this review. From this research update it can be concluded that the body of knowledge increased with more studies focusing on caregivers of patients with advanced heart failure.

Thu, 07/20/2017 - 15:08

Occupational therapy for caregivers of people with dementia: a review of the United Kingdom literature

Introduction: Caring for a family member with dementia is associated with a wide range of challenges. The national strategy for caregivers highlights the growing need for health professionals to provide support to caregivers of people with dementia. This review aimed to identify the evidence and current role of occupational therapists in supporting caregivers of people with dementia in the community.

Thu, 07/20/2017 - 15:08

Public interest and private concern: the role of family carers for people suffering mental illness in the twenty first century

Objectives: This paper looks to examine the emerging role of carers as essential components in the management of individuals affected by severe mental illness in the context of modern legal and health policy environments. Conclusions: Cultural and legal concepts of confidentiality within the doctor–patient relationship are complex.

Thu, 07/20/2017 - 15:08

Challenging professional roles: lay carers' involvement in health care in the community

The bulk of care in the community is carried out by lay carers. Recent policy initiatives to support them in the United Kingdom are outlined. There remains evidence of significant gaps in support from professional health and social-care workers including community nurses. This paper reports three studies of lay carers: those caring for older people, carers of technology-dependent children, and home-care workers involved in the “direct payments” scheme.

Thu, 07/20/2017 - 15:08

Improving quality of life for carers

There are 5.7 million carers across the UK, providing care and support to family members, relatives or friends who are ill, disabled or elderly and frail (Office of Populations, Censuses and Surveys, 1995). It is estimated that informal carers save the country £34 billion annually (Nuttall et al, 1993). If carers decided to stop providing informal care, health and social services would be overwhelmed by the increase in workload, many people would suffer and taxes would increase dramatically.

Thu, 07/20/2017 - 15:08

Assistance received by employed caregivers and their care recipients: Who helps care recipients when caregivers work full time?

Purpose: This study examined the association among caregiver labor force participation, employees' caregiving activities, and the amount and quality of care received by care recipients. Design and Methods:Telephone interviews were conducted with 478 adults who were employed full time and 705 nonemployed adults who provided care to a family member or friend aged 50 or older, identified through random sampling of California households.

Thu, 07/20/2017 - 15:08

Treatment decision-making in cancer care: the role of the carer

Aims and objectives.  This study explores the role of the carer in treatment decision-making in cancer care.

Thu, 07/20/2017 - 15:08

A lifeline for carers

Caring for a loved one can take its toll physically and emotionally. Caroline Swinburne discovers how district nurses can ease the load. Supporting unpaid carers is an important but often unseen aspect of community nursing.

Thu, 07/20/2017 - 15:08

Caring for and caring about: Disentangling the caregiver effect and the family effect

Besides patients’ health and well-being, healthcare interventions may affect the well-being of significant others. Such ‘spill over effects’ in significant others may be distinguished in two distinct effects: (i) the caregiving effect and (ii) the family effect. The first refers to the welfare effects of providing informal care, i.e., the effects of caring for someone who is ill. The second refers to a direct influence of the health of a patient on others’ well-being, i.e., the effects of caring about other people.

Thu, 07/20/2017 - 15:08