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Family Caregiver Partnerships in Palliative Care Research Design and Implementation

The article discusses the effectiveness of family caregiver partnerships in the design and implementation of pediatric palliative care (PPC) research. Also cited are the importance of the perspectives of family caregivers, clinicians and researchers in improving research, and the principles of patient- and family-centered research like honesty, cultural competency, and transparency.

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Key Information

Type of Reference
Jour
Type of Work
Opinion
Publisher
American Academy of Pediatrics
ISBN/ISSN
0031-4005
Publication Year
2021
Issue Number
1
Journal Titles
Pediatrics
Volume Number
148
Start Page
e2020049403