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The effect of a purpose-built memory support unit on the transition to high level dementia care; Perspectives of multiple participants

Australia faces the challenge of an ageing population. The incidence of people with dementia unable to live in the community is expected to rise leading to demands on care facilities to provide specialised care. This paper reports on the effect a purpose-built Memory Support Unit has on multiple participants during the transition from home, or an aged care residence, to high level dementia care.

Sat, 11/28/2020 - 10:26

Developing Unique Insights From Narrative Responses to Bereaved Family Surveys

Context: Although bereaved family surveys (BFS) are routinely used quantitatively for quality assessment, open-ended and narrative responses are rarely systematically analyzed. Analysis of narrative responses may identify opportunities for improving end-of-life (EOL) care delivery. Objectives: To highlight the value of routine and systematic analysis of narrative responses and to thematically summarize narrative responses to the BFS of Veterans Affairs.

Thu, 11/26/2020 - 12:10

Design, data linkage, and implementation considerations in the first cooperative group led study assessing financial outcomes in cancer patients and their informal caregivers

Few studies have assessed the financial impact of cancer diagnosis on patients and caregivers in diverse clinical settings. S1417CD, led by the SWOG Cancer Research Network, is the first prospective longitudinal cohort study assessing financial outcomes conducted in the NCI Community Oncology Research Program (NCORP). We report our experience navigating design and implementation barriers. Patients age ≥ 18 within 120 days of metastatic colorectal cancer diagnosis were considered eligible and invited to identify a caregiver to participate in an optional substudy.

Thu, 11/26/2020 - 11:45

Depression in People With Dementia and Caregiver Outcomes: Results From the European Right Time Place Care Study

To investigate the cross-sectional associations between depression in people with dementia and both caregiver burden and quality of life in 8 European countries, and to test these associations compared with the presence of other neuropsychiatric symptoms. Cross-sectional study. In total, 1223 dyads comprised of informal caregivers and people with dementia living in a community-dwelling setting, recruited from the Right Time Place Care study, a cohort survey from 8 European countries.

Thu, 11/26/2020 - 11:38

Cultural Values, Preferences, and Goals of End-of-Life Care of Family Members of Patients with Life-Limiting Illness in Kumasi, Ghana: A Community-Based Study (GP702)

Objectives: • Recognize the Importance and relevance of culture to EOL care. • Describe CBPR and focus group methods. • Examine what patients with serious illness in Ghanaian hospital face.

Wed, 11/25/2020 - 17:47

Comparing Symptom Ratings by Staff and Family Carers in Residents Dying in Long-Term Care Facilities in Three European Countries, Results From a PACE Survey

Context Symptom management is essential in the end-of-life care of long-term care facility residents. Objectives To study discrepancies and possible associated factors in staff and family carers' symptom assessment scores for residents in the last week of life. Methods A postmortem survey in Belgium, The Netherlands, and Finland: staff and family carers completed the End-of-Life in Dementia-Comfort Assessment in Dying scale, rating 14 symptoms on a one-point to three-point scale. Higher scores reflect better comfort.

Tue, 11/24/2020 - 19:45

Comparing Advance Care Planning in Young-Onset Dementia in the USA vs Belgium: Challenges Partly Related to Societal Context

Advance care planning in young-onset dementia largely remains a blind spot within current literature. This study aimed to explore the engagement in and the conceptualization of advance care planning from the perspective of family caregivers of persons with young-onset dementia and to identify potential similarities and differences in this area between American and Belgian persons with young-onset dementia and their family caregivers. An exploratory qualitative study.

Tue, 11/24/2020 - 19:27

Carer burden and dyadic attachment orientations in adult children-older parent dyads

• Anxious-avoidant attachment pairings predict increased burden in adult-child carers. • Similar attachment insecurity in parent-child dyads do not predict burden. • Taking a dyadic approach to examining attachment in ageing families is critical.

Mon, 11/23/2020 - 13:21

Caregiver-Guided Pain Management for Advanced Cancer: Results of a Randomized Controlled Trial

Objectives Explain the potential benefits of a caregiver-assisted pain coping skills training intervention. Describe the relative benefits of the caregiver-assisted pain coping skills intervention compared to enhanced treatment-as-usual for patients with advanced cancer and their family caregivers. Describe challenges of delivering a behavioral intervention to patients with serious illness. Importance. Pain is common among patients with advanced cancer and causes distress for both patients and their caregivers.

Mon, 11/23/2020 - 12:31

Caregiver perceptions in caring for post-stroke patients in Palopo City, South Sulawesi

The general aim of this study is to identify the events experienced by the caregiver (the husband/wife) in providing care to the post-stroke partner in Palopo City, South Sulawesi. This study is qualitative research using phenomenology design. Qualitative study is conducted to find out certain reasons on a topic or to understand the occurrence of a topic. The focus of the phenomenological approach is on the essence or event experienced by the participants.

Mon, 11/23/2020 - 12:20

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