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Elsevier

Supportive nursing care for family caregivers – A retrospective nursing file study

Background: Family caregivers enable patients to be cared for and die at home whereas nurses aim to support the family caregivers of these patients. Information on how this support is provided and how this is documented in nursing files is largely lacking. Objectives: To gain insight in nurses' reports on the supportive care for family caregivers. Methods: We studied 59 nursing files of adult patients who had received hospice home care in the Netherlands from 4 home care organisations between August 2017 and October 2018.

Tue, 06/28/2022 - 22:29

Supporting self-care of long-term conditions in people with dementia: A systematic review

Background: Long-term conditions are common in people living with dementia; their self-management is an important determinant of wellbeing. Family carers often support or substitute self-care activities, and act as proxies for self-management, as dementia progresses. Objectives: To conduct the first systematic review of how management of long-term conditions in people with dementia is best enabled and supported, including factors that facilitate or inhibit self-management and management by a proxy. Design: Systematic review.

Tue, 06/28/2022 - 17:01

Supporting family carers of people with dementia: A discrete choice experiment of public preferences

Background: Community-based care for people with dementia is mainly provided by family carers, many of whom experience decreased mental, physical and financial well-being due to their caring role. Many countries are now implementing ageing-in-place policies that have increased pressure on family carers as care-work is redistributed from residential to community-based settings. Family caring responsibilities for people with dementia are made even more complicated by the economic, social and cultural expectations that underpin existing provision.

Tue, 06/28/2022 - 16:39

Support Intervention for Families and Caregivers of Palliative Care Patients (QI701)

Objectives: 1. Develop a streamlined, routine psychosocial spiritual assessment among families and caregivers of palliative care patients. 2. Develop streamlined, routine psychosocial spiritual needs intervention among families and caregivers of palliative care patients. Background: Complicated grief is intense, debilitating grief for more than six months after loss and is predicted by pre-loss depressive symptoms and unmet psychosocial needs.

Tue, 06/28/2022 - 13:55

Suicidality in family caregivers of people with long-term illnesses and disabilities: A scoping review

Background: An emerging body of international research suggests family caregivers may be a high-risk group for suicide, but the evidence has not been synthesised. Methods: Forty-eight peer-reviewed journal articles were included in this review, spanning low-, middle-, and high-income countries and a variety of illnesses and disabilities. Findings: The proportion of caregivers experiencing suicidal ideation ranged from 2.7% to 71%, with evidence of suicide attempts, deaths by suicide, and deaths by homicide-suicide also reported.

Tue, 06/28/2022 - 13:39

Stress and Support in Family and Non-Family Relationships Within Hospice Cancer Survivor Social Networks (SCI954)

Background: Effective social support mitigates burden and distress experienced by cancer caregivers. Little research, however, investigates informal support within social networks of family caregivers of cancer home hospice patients, and how social stress may accompany this support. Research Objectives: We assessed patterns of support and stress within the social networks identified by family caregivers of cancer home hospice patients (N=90). Methods: We analyzed secondary data from a longitudinal multi-site study.

Wed, 06/22/2022 - 17:06

Spouse and Adult-Child Dementia Caregivers in Chinese American Families: Who Are More Stressed Out?

Background: Though many studies have explored differences between spouses and adult children in dementia care, empirical evidence is lacking on racial- and ethnic-minority populations. Methods: To fill this research gap, this study examined care tasks, caregiver burden, and depressive symptoms of Chinese spouse and adult-child caregivers in dementia care.

Wed, 06/22/2022 - 13:39

Solution to support informal caregivers of patients with dementia

Background: The dementia is a degenerative uncurable disease. Giving its high prevalence worldwide, it is considered a major global public health concern. Patients with dementia need long-term care and support at home. Current evidence demonstrates that their informal caregivers are prone to psychiatric and cardiovascular diseases and lack formal support that can help them in their exhausting daily routine. We intend to report the creation of an ICT solution to support informal caregivers of patients with dementia, addressing identified needs.

Wed, 06/22/2022 - 13:32

Relatives' experiences of providing care for individuals with suicidal behaviour conceptualized as a moral career: A meta-ethnographic study

Background: An increasing number of qualitative research articles have reported on relatives' experiences of providing care for individuals displaying suicidal behaviour. To contribute more fully to theory and practice, these reported experiences must be synthesized. Objectives: To identify original qualitative studies of relatives' experiences of providing care for individuals with non-fatal suicidal behaviour and to systematically review and synthesize this research using a meta-ethnographic approach.

Sat, 06/18/2022 - 13:04

Ready and able? Professional awareness and responses to young carers in Switzerland

Background:  It is unknown how Swiss professionals support for young carers.  Previous national research suggests a lack of support services for young carers.  Professionals do provide individual as well as a family-centred support.  Social services seem to be most inclined to initiating interdisciplinary support. The situation of children, adolescents, young adults with caring responsibilities and their families has only recently been addressed in the Swiss context.

Sat, 06/18/2022 - 11:08

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