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The third person in the room: the needs of care partners of older people in home care services - a systematic review from a person-centred perspective

AIMS AND OBJECTIVES: To identify and synthesise the needs of care partners of older people living at home with assistance from home care services., BACKGROUND: "Ageing in place" is a promoted concept where care partners and home care services play significant roles. Identifying the needs of care partners and finding systematic ways of meeting them can help care partners to cope with their role., DESIGN/METHODS: This study is based on the PRISMA reporting guidelines.

Fri, 04/12/2019 - 16:27

Dealing with daily challenges in dementia (deal-id study): an experience sampling study to assess caregiver functioning in the flow of daily life

Objective: Accurate assessment of caregiver functioning is of great importance to gain better insight into daily caregiver functioning and to prevent high levels of burden. The experience sampling methodology (ESM) is an innovative approach to assess subjective experiences and behaviour within daily life. In this study, the feasibility of the ESM in spousal caregivers of people with dementia was examined, and the usability of ESM data for clinical and scientific practice was demonstrated.

Wed, 04/10/2019 - 14:49

Filling the gaps and finding our way: family carers navigating the healthcare system to access physical health services for the people they care for

Aims and Objectives To elicit the perspectives of carers of people with mental illness regarding access to, and experience with, physical healthcare services for mental health consumers. Background People diagnosed with mental illness have increased risks of physical illness and earlier death, problems able to be addressed through better physical health services. Carers of people with mental illness play a significant role in the mental healthcare system yet research examining their views is lacking. Design Qualitative exploratory.

Wed, 04/10/2019 - 14:04

Responsibility for child and elderly care: who should cover the costs? A comparison of Baltic and Nordic countries

Using data from the International Social Survey Programme (2012), this study compares public attitudes towards who should cover the costs of caring for children and older people in five Nordic countries (Finland, Sweden, Norway, Iceland and Denmark) and two Baltic ones (Latvia and Lithuania). The study found interesting differences between both groups of nations: citizens from Baltic countries consider the role of the family more important than their counterparts in Nordic countries.

Wed, 04/10/2019 - 13:48

Trajectories of caregiver burden and related factors in family caregivers of patients with lung cancer

Objective This study aimed to (1) identify the changes of 5 domains of family caregiver (FC) burden, overall burden, and its subtrajectories when caring for newly diagnosed advanced lung cancer patients during the first 6 months following cancer diagnosis; and (2) identify the FC‐related and patient‐related factors most associated with the overall FC burden and each of its subtrajectories. Methods A total of 150 newly diagnosed advanced lung cancer patient‐FC dyads were recruited from a Taiwanese medical center.

Mon, 04/08/2019 - 13:43

Predictors of quality of life and depression among Korean‐American cancer patients and their family caregivers

Objective This study examined social, cultural, and appraisal factors associated with Korean‐American cancer patients' and their family caregivers' quality of life (QOL) and depression. Methods Data were from Korean‐American cancer patients and their family caregivers (N = 60 dyads) living in the United States. Study aims were examined using descriptive statistics and multiple regression.

Mon, 04/08/2019 - 13:38

Mental health carers' experiences of an Australian Carer Peer Support program: Tailoring supports to carers' needs

Carer Peer Support Workers (CPSWs) are people who have lived experience as carers/family members of persons with a mental illness, and are employed to provide support to other carers/family members. This qualitative study aimed to explore carers' experiences within a community-based CPSW pilot program in an Australian mental health service. Semi-structured phone interviews were conducted with 20 carer participants in 2015, 5-10 months following their last contact with the service.

Mon, 04/08/2019 - 11:40

Resilience in family caregiving for people with dementia: A systematic review

Objective The objective of this review is to critically examine, evaluate, and synthesize the literature on resilience in family caregiving for people with dementia. Methods A systematic literature review was conducted according to PRISMA guidelines to identify articles which examined resilience and related concepts in family caregiving for people with dementia. The review was based on a systematic search of scholarly databases, to yield peer‐reviewed articles and grey literature, published between 2006 and 2016.

Fri, 04/05/2019 - 13:57

Patterns of carer distress over time in mild dementia

Objective To study the level of carer reported distress in mild dementia, over a 3‐year period. Methods This study is part of the Norwegian DemVest‐study and utilises data from carers of people with mild dementia (n = 223). Those diagnosed with dementia with Lewy bodies (DLB, n = 63) and Alzheimer's disease (AD, n = 97) were included together with other dementia types (n = 63). The Relatives' Stress Scale was used to assess the level of reported distress in carers.

Fri, 04/05/2019 - 11:20

The impact of early psychosocial intervention on self‐efficacy of care recipient/carer dyads living with early‐stage dementia—A mixed‐methods study

Aim To evaluate the effect of a targeted community‐based psychosocial intervention on self‐efficacy outcomes for care recipient/carer dyads living with early‐stage dementia. Background There is increasing interest in the role of self‐efficacy and self‐management structures in determining positive outcomes for people with dementia. The assumption is that care recipient/carer dyads who receive early support to identify and adjust to dementia‐related changes will cope better in the long term.

Fri, 04/05/2019 - 10:59

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