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One Chance to Get it Right: understanding the new guidance for care of the dying person

Background: Following criticism of the Liverpool Care of the Dying Pathway (LCP), widely used to guide care of dying people in British health-care settings, the UK Government set up an independent review which in 2013 recommended that use of the LCP be discontinued. In response, the Leadership Alliance for the Care of Dying People, a coalition of a wide range of stakeholders, recently published guidance entitled One Chance to Get it Right.

Thu, 07/20/2017 - 15:09

Research into Practice

Focuses on a research on older people who combine the caring role with paid employment. Stages of data collection used in the study; Findings of the research concerning employment policies; Reasons behind the decrease in the number of informal carers.

Thu, 07/20/2017 - 15:09

Information needs of families when one member has a severe brain injury

Despite calls for health and social services to respond to the needs of informal carers, there is little evidence to guide practioners in the best way to provide support and/or information in situations of complex need such as brain injury. This study addressed such an intervention in a prospective descriptive study, using both qualitative and quantitative methodology. Eighty-nine patients who had been admitted to a regional neurorehabilitation unit for management of traumatic or haemorrhagic brain injuries were consecutively discharged to the community over a period of 12 months.

Thu, 07/20/2017 - 15:09

The Vicious Cycle of Parental Caregiving and Financial Well-being: A Longitudinal Study of Women

Objectives: This study examines the relationship between caring for older parents and the financial well-being of caregivers by investigating whether a reciprocal association, or vicious cycle, exists between female caregiver’s lower household incomes and caring for elderly parents.

Method: Data for women aged 51 or older with at least 1 living parent or parent-in-law were drawn from the Health and Retirement Survey 2006, 2008, and 2010 (N = 2,093). A cross-lagged panel design was applied with structural equation modeling.

Thu, 07/20/2017 - 15:09

The use of social healthcare resources and informal care characteristics care ofimmobilised homecare patients

Objective: To describe the use of social healthcare resources by immobilised patients and informal care characteristics and the level/degree of satisfaction with home care services.

Thu, 07/20/2017 - 15:09

Looking after our old: who cares?

Informal care of older people, including a summary of research on the attitudes towards willingness to care for an elderly person among members of the general public aged 20-39 years and 40-59 years. Nurses' attitudes towards elderly care nursing are also discussed. It is suggested that nurses can influence attitudes to the elderly and engage with informal carers. [(BNI unique abstract)] 11 references

Thu, 07/20/2017 - 15:09

Caregiver perceptions of accomplishment from assisting people with multiple sclerosis

Objectives: Identify factors of informal caregivers, caregiving, and people with multiple sclerosis (MS) receiving assistance that are associated with perceptions of caregiver accomplishment. Methods: National data were collected in a telephone interview survey of 530 informal caregivers and analyzed using an ordered logistic regression model to identify factors associated with perceptions of caregiver accomplishment among 442 of these informal caregivers (caregivers providing all data in their survey responses needed for the regression model). Results: We found t

Thu, 07/20/2017 - 15:09

The daily living for informal caregivers with a partner with Parkinson's disease - an interview study of women's experiences of care decisions and self-management

Aim.  To throw light on the lived experiences of female partners of patients with Parkinson disease living at home.

Background.  It is known that daily life with a partner with Parkinson’s disease entails radical upheaval in the family, in particular for the female partner.

Methodology.  A phenomenological hermeneutic approach was used. Interviews with female partners (N = 10) of patients with Parkinson disease who were living at home were conducted in Denmark in 2008. The French philosopher Ricoeur’s theory of interpretation guided the data analysis.

Thu, 07/20/2017 - 15:09

Older carers in the UK: who cares?

Long-term care in the UK relies heavily on informal and unpaid carers. Statistical data regarding the number of carers in the 2001 Census compared with the 2011 Census identify an increase of around 600 000 carers. It is also significant that many of these carers are themselves in their late middle age. The reasons for taking on the caring role are varied, but there are significant potential physical, mental and financial issues associated with taking on the caring role. Positive benefits in terms of support provision for the carer do exist, but support services across the UK are variable.

Thu, 07/20/2017 - 15:09