You are here

  1. Home
  2. Jour

Jour

More than one wavelength : identifying, understanding and resolving conflicts of interest between people with intellectual disabilities and their family carers

The present paper describes conflicts of interest in families which include someone with intellectual disabilities. Data were taken from a study concerned with the 1995 Carers Act. The research examined the experiences and views of 51 families who had some kind of assessment by a social services department. Cases were analysed where it was found that carers, the people for whom they cared and the assessors did not agree about such conflicts. Assessors sometimes stereotyped families and spoke of conflicts of interest when the situation was more complex.

Thu, 07/20/2017 - 15:13

A stress-busting program for family caregivers

Aging baby boomers, longer life spans, and rising levels of Alzheimer's disease and related dementias (ADRD) will result in a caregiver crisis in the near future. The ways in which caregivers deal with stresses related to caregiving will be critical to both their own well-being and their ability to care for others. The purpose of this article is to describe the Stress-Busting Program (SBP) for family caregivers and its effectiveness. The essential components of the SBP are education, stress management, problem solving, and support delivered in a group setting for 9 weeks.

Thu, 07/20/2017 - 15:13

Nurses' experiences of caring for their own family members

There is a wealth of literature that addresses the needs of informal caregivers and the needs of health professionals caring for someone with a life-threatening illness. However, there is a paucity of research that deals with nurses who are caring for their own relative who has a life-threatening illness. This qualitative study explores the information needs, support systems available, and the impact that this experience has upon the nurse's quality of life.

Thu, 07/20/2017 - 15:13

Needs of carers of severely disabled people: are they identified and met adequately?

Objective: To examine the unmet needs of informal carers of community dwelling disabled people and to compare their perspectives to those of disabled people and nominated professionals. It was hypothesised that a poor recognition of carers’ needs could have implications for carers’ well- being and thus their ability to maintain their caring role. Need was defined as a service or a resource that would confer a health or rehabilitation gain.

Thu, 07/20/2017 - 15:13

Commentary on “Growing older together: ageing and people with learning disabilities and their family carers”

Purpose – This commentary aims to support Carol Walker and Cally Ward's paper by directing readers to work which could guide their practice with older people with learning disabilities and ageing family carers.

Design/methodology/approach – The paper is a selected review of initiatives to support older people with learning disabilities and their family carers over the past decade. Examples from the author's personal contacts are used to illustrate the discussion.

Thu, 07/20/2017 - 15:13

What kinds of jobs help carers combine care and employment?

This paper provides information about what job characteristics promote or inhibit maintaining employment while caring. Using a nationally representative longitudinal data set—the Household Income and Labour Dynamics in Australia (HILDA) survey—the paper traces the effects of the onset of care on labour force participation.

Thu, 07/20/2017 - 15:13

Supporting family carers in the community setting

The author examines the pressures that may be experienced by carers in the community and discusses ways in which nurses can help to address these problems. 

Thu, 07/20/2017 - 15:13

The Carer Support Needs Assessment Tool (CSNAT) for Use in Palliative and End-of-life Care at Home: A Validation Study

Context. Family carers need to be supported in their central role of caring for patients at the end of life, but brief practical tools to assess their support needs have been missing. To address this gap, we developed a brief evidence-based Carer Support Needs Assessment Tool (CSNAT) suitable for everyday practice. Objectives. To assess face, content, and criterion validity of the CSNAT and measure sensitivity to change over time. Methods. Participants were 225 adult carers of patients from six U. K. Hospice Home Care services.

Thu, 07/20/2017 - 15:13

Stroke survivor and carer perspectives of the concept of recovery: a qualitative study

Purpose: This study was designed to explore the concept of recovery from the perspectives of stroke survivors and informal carers. The aim of this qualitative study was to identify the main factors that are perceived to contribute to recovery after stroke. Method: Data were obtained via focus groups using semistructured questionnaires. One focus group included all participants (n = 14). This was followed by separate focus groups for stroke survivors (n = 8) and informal carers (n = 6).

Thu, 07/20/2017 - 15:13

Ageing and people with learning disabilities: in search of evidence

Background: Growing numbers of people with learning disabilities are now living into older age. This study aims to examine the state of knowledge about their lives and the challenges that ageing has for both family carers and policymakers and practitioners.

Materials and Methods: The article synthesises existing research in the fields of learning disability, ageing and family and social care with a view to learning lessons from these separate fields, identifying possibilities for collaboration and identifying gaps in knowledge.

Thu, 07/20/2017 - 15:13