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Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals

Objectives: To determine the problems and issues of accessing specialist palliative care by patients, informal carers and health and social care professionals involved in their care in primary and secondary care settings. Data sources: Eleven electronic databases (medical, health-related and social science) were searched from the beginning of 1997 to October 2003.

Thu, 07/20/2017 - 15:10

Labor market outcomes of informal care provision in Japan

This paper examines the labor supply outcomes of family care provision for Japanese households in 2010, ten years after the introduction of the public long-term care insurance (LTCI) program. We found that family care provision for parents adversely affected labor market outcomes of main caregivers at home in terms of the probability of working, employment status and hours worked. The adverse effect was found to be more serious for female caregivers than for male caregivers.

Thu, 07/20/2017 - 15:10

Negotiating a Labyrinth: experiences of assessment and diagnostic journey in cognitive impairment and dementia

Objectives: There has been a global push towards the earlier diagnosis of dementia, but there is little understanding of the transitions along the assessment and diagnostic pathway from the perspective of people affected by memory problems, cognitive impairment and early dementia. This study explores the experience of the assessment and diagnostic pathway for people with cognitive impairment and their family carers.

Thu, 07/20/2017 - 15:10

Impact of caring for individuals with stroke on perceived physical health of informal caregivers

Purpose. Caring for a person who has experienced stroke can be a formidable task placing considerable demands upon the informal caregiver. Although the impact of caring on mental health has been well established, less convincing associations between caregiving and declining physical health have been reported. In order to examine the impact of caregiving over time on the physical health of individuals providing informal care for individuals with stroke, we conducted a review of the published literature.

Thu, 07/20/2017 - 15:10

Disability in young adults following major trauma: 5 year follow up of survivors

Background: Injuries are a major cause of mortality and morbidity in young people. Despite this, the long-term consequences for young survivors of severe injury are relatively unexplored. Methods: Population based cohort study involving 5 year post injury structured interview of all cases of major trauma ( Injury Severity Score > 15) identified retrospectively for 12 month period ( 1988 to 1989) within former Yorkshire Health Authority area of the United Kingdom. Results: 125 individuals aged 11 24 years at time of injury were identified. Of these, 109 ( 87%) were interviewed.

Thu, 07/20/2017 - 15:10

Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service

Despite evidence of high psychological distress and unmet needs, evaluated interventions for informal caregivers in palliative care are few. This study involved an observational outcome evaluation of attendees, and a comparison group, in specialist home palliative care. The measures included carer psychological status and patient physical status at baseline, 8 weeks, and 20 weeks. Qualitative data were collected regarding content, satisfaction with, and impact of intervention. Process data described the uptake, resources, and group activity.

Thu, 07/20/2017 - 15:10

Review: a conceptual model of perceived burden of informal caregivers for older persons with a severe functional psychiatric syndrome and comcomitant problematic behaviour

Aims and objectives.  This literature review aims to delineate the determinants of perceived burden by informal caregivers and provide insight into the interrelatedness between these determinants.

Background.  Despite the attention given to the various determinants of perceived burden, their interrelatedness has not been unravelled. Insight into this interrelatedness is mandatory for the development of successful, complex, multivariate interventions to reduce perceived burden of informal caregivers.

Design.  Systematic review.

Thu, 07/20/2017 - 15:10

Stressors and life goals of caregivers of individuals with disabilities

Caregivers of individuals with disabilities can experience stress as they manage care giving responsibilities while they attempt to balance family, work, and the satisfaction of their personal goals. In this pilot study, 31 caregivers of individuals with a variety of disabilities completed a quantitative-qualitative survey.

Thu, 07/20/2017 - 15:10