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Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc)

Background: This study aims to build a measure for assessing and reviewing the living conditions, care and human rights of people with longer term mental health problems in psychiatric and social care institutions. Protection of their human rights is imperative since impaired mental capacity secondary to mental illness can make them vulnerable to abuse and exploitation from others. They also constitute a major resource pressure for mental health services, social services, informal carers and society as a whole.

Thu, 07/20/2017 - 15:10

Carers of older people with dementia: assessment and the Carers Act

The Carers (Recognition and Services) Act 1995 came into force on 1 April 1996. It entitles carers who are providing substantial amounts of care on a regular basis to an assessment of their needs and ability to care. Local authorities are required to take the results of this assessment into account when making decisions about services. This paper reports the key findings of a two-year study, conducted in Wales, that evaluated the process and outcomes of assessments carried out under the auspices of the Carers Act.

Thu, 07/20/2017 - 15:10

Relatives in end-of-life care - part 1: a systematic review of the literature the five last years, January 1999-February 2004

Aim. To review systematically research conducted during the past five years focusing on the relatives' situation and needs in end-of-life care. Background and aim. That relatives make a large contribution in the care of the dying is well-known. In this situation, relatives often have to solve many new practical problems in the care as well as dealing with the sorrow of both themselves and the dying person. In recent years, palliative care has been developed in many countries and many new studies have been carried out. Methods.

Thu, 07/20/2017 - 15:10

Working with ambivalence: informal caregivers of patients at the end of life

Informal caregivers of patients at the end of life perform a crucial role in maintaining and supporting patients at home. They provide a high level of demanding care, and as a consequence have been shown to have high-level information and support needs themselves. However, they are less often identified as recipients of services than as providers, and little research has addressed how services should be developed to meet their needs. This study aimed to address obstacles in the access to and provision of targeted, appropriate interventions.

Thu, 07/20/2017 - 15:10

Improving care of older people through intermediate services

The aim of intermediate care, according to the National Service Framework for Older People, is to provide integrated services to promote faster recovery from illness, prevent unnecessary acute hospital admissions, support timely discharge, and maximise independent living. In Hackney, east London, this has resulted in two innovative approaches to meeting the NSF target.

Thu, 07/20/2017 - 15:10

Counsel of success

Reports on the evaluation of Dementia Care Trust's counselling service for carers, which now also offers counselling for people with dementia too.

Thu, 07/20/2017 - 15:10

Continuity and loss: the carer's journey through dementia

This paper looks at the ambiguous journey travelled by family, mainly spouse, carers in Scotland is based on 37 interviews which formed part of a larger study exploring the subjective experience of 20 individuals with dementia. The majority of the interviews were conducted with the carer alone, others with the relative with dementia (RWD) present and some as joint interviews.

Thu, 07/20/2017 - 15:10

Alzheimer's disease and the psychosocial burden for caregivers

The majority of patients with Alzheimer's disease are cared for by their families at home. Caring for someone with Alzheimer's disease is commonly portrayed in terms of 'problematic' behaviour. This study explored the level of understanding carers have of the illness and the psychosocial impacts carers experience. Qualitative interviews were conducted with eight carers who had been looking after their relatives in community settings. Findings suggest that the carers in this study have a distinct lack of knowledge regarding Alzheimer's disease and its management.

Thu, 07/20/2017 - 15:10

Dementia's cultural challenge

Discusses the finding of research which looks at how carers from ethnic minorities view statutory services for family members with dementia. The research, funded by the School of Health and Social Welfare at the Open University, focused on people from south Asian or African-Caribbean backgrounds.

Thu, 07/20/2017 - 15:10

Interactive health communication applications for chronic disease: patient and carer perspectives

BACKGROUND: Interactive Health Communication Applications (IHCAs) are computer-based, usually web-based, information packages for patients that combine health information with at least one of social support, decision support, or behaviour change support. These are innovations in health care and their effects on health are uncertain.

OBJECTIVES: To assess the effects of IHCAs for people with chronic disease.

Thu, 07/20/2017 - 15:10