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Breast cancer information and support needs for women with intellectual disabilities: a scoping study

Objective: To examine the compass and nature of relevant research and identify gaps in the current evidence in order to determine the priority of future research about breast cancer and intellectual disability (ID).

Methods: A scoping study that comprised of a consultation exercise with a wide range of key stakeholders (n = 26) from one northern city (Sheffield) within the UK.

Thu, 07/20/2017 - 15:10

A meeting centre for Surinam people with dementia and their informal carers; development and implementation of culture specific combined support

In this study we investigated the implementation of a support programme for Surinam people with dementia and their carers. The reason for setting up a new type of support was the finding that the regular care is unable to meet the needs of elderly people from ethnic minorities and their carers. We traced facilitating and impeding factors in the successful implementation of the support programme. We also evaluated the result of the implementation. Data were gathered among participants in the programme (n=24) by means of questionnaires.

Thu, 07/20/2017 - 15:10

Self-management by family caregivers to manage changes in the behavior and mood of their relative with dementia : an online focus group study

Background: Self-management is important for family caregivers of people with dementia, especially when they face changes in their relative’s behavior and mood, such as depression, apathy, anxiety, agitation and aggression. The aim of this study is to give insight into why these changes in behavior and mood are stressful for family caregivers, what self-management strategies family caregivers use when managing these changes and the stress they experience.

Thu, 07/20/2017 - 15:10

Does Informal Eldercare Impede Women's Employment? The Case of European Welfare States

Abstract European states vary in eldercare policies and in gendered norms of family care, and this study uses these variations to gain insight into the importance of macro-level factors for the work–care relationship. Using advanced panel data methods on European Community Household Panel (ECHP) data for 1994–2001, this study finds women's employment to be negatively associated with informal caregiving to the elderly across the European Union.

Thu, 07/20/2017 - 15:10

Problem-solving counselling for caregivers of stroke survivors - An analysis of the addressed topics

Problem-solving therapies for family caregivers have been described for different dyads and care recipients with various chronic conditions. Only little attention is directed to the specific topics worked on with informal caregivers. This study focuses on the intensive intervention period of 3 months of an individualized mainly telephone-based problem-solving training for informal carers of stroke survivors (TIPS-Study). We present data of 47 strained caregivers who cared for their spouses and partners (n=42) or (grand-)parents (n=5).

Thu, 07/20/2017 - 15:10

Nearest and dearest? The neglect of lesbians in caring relationships

The article argues that caring within lesbian relationships has been ignored in social and health care studies and practice. It critiques the dominance of caring debates by relationships between parents and children and partnerships, but with the unspoken presumption that those involved are heterosexual. The paper concludes that social workers should engage with lesbian carers in supporting individuals and networks. It draws out a range of implications for policy, practice and research agendas.

Thu, 07/20/2017 - 15:10

Family care for immigrants with dementia: the perspectives of female family carers living in the Netherlands

BACKGROUND: The prevalence of dementia is increasing among non-western immigrants. It is known that family care is provided relatively often among immigrant groups. Until now, however, relatively little was known about how relatives of people with dementia in the immigrant communities perceive family care. This study therefore focuses on describing the perspectives of female Turkish, Moroccan and Surinamese Creole family carers in the Netherlands about providing family care to a close relative with dementia.

Thu, 07/20/2017 - 15:10

Experiences of adults providing care to a partner or relative with depression: A meta-ethnographic synthesis

Background: International interest in the informal carer role has grown in part because of the relationship between caring and caregiver burden. It has been suggested that living with someone with depression is comparable to that of other serious mental health problems, such as schizophrenia or dementia.

Methods: This meta-ethnography included 15 studies exploring experiences of living with a relative or partner with depression. Studies were heterogeneous regarding types of relationship with the depressed individual.

Thu, 07/20/2017 - 15:10

Asking questions during breast cancer consultations: Does being alone or being accompanied make a difference?

Purpose: Companions often accompany patients to cancer consultations. The number of questions asked by patients and companions is an indicator of their active participation. The present study aims to provide first descriptive evidence on the characteristics of unaccompanied and accompanied Italian breast cancer patients that attend the first consultation after surgery and to analyse companions contribution to the type and quantity of questions asked during the consultation.

Thu, 07/20/2017 - 15:10

Rehabilitation of older patients: day hospital compared with rehabilitation at home. A randomised controlled trial

Objectives: To test the hypotheses that older people and their informal carers are not disadvantaged by home-based rehabilitation (HBR) relative to day hospital rehabilitation (DHR) and that HBR is less costly.

Design: Two-arm randomised controlled trial.

Setting: Four trusts in England providing both HBR and DHR.

Participants: Clinical staff reviewed consecutive referrals to identify subjects who were potentially suitable for randomisation according to the defined inclusion criteria.

Interventions: Patients were randomised to receive either HBR or DHR.

Thu, 07/20/2017 - 15:10