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Can a Service Robot Which Supports Independent Living of Older People Disobey a Command? The Views of Older People, Informal Carers and Professional Caregivers on the Acceptability of Robots

Sustaining independent living for elderly people in their own homes is desirable for various reasons. As older people become frail or disabled, a ‘gap’ appears between the abilities they still have and the abilities that are required for independent living. To a certain extent robots may close this gap by providing functionality lost through frailty or disability. A scenario was created involving a re-enablement coach robot. This scenario was discussed with older people, informal carers, and care professionals in focus groups in the Netherlands, United Kingdom and France.

Thu, 07/20/2017 - 15:09

'Fighting for everything': service experiences of people severely affected by multiple sclerosis

Background No previous research exists specifically exploring the needs of those people severely affected by multiple sclerosis (MS).

Methods Semi-structured interviews were conducted with people identified by the referring health or social care professional as being severely affected by their MS and informal carers, in order to explore their perceptions of their illness and care. The data were analysed for themes using the constant comparative approach.

Thu, 07/20/2017 - 15:09

Moving toward Medicare home health coverage for people with Alzheimer’s disease

Medicare home health care policy does not incorporate research evidence of effective palliative home care interventions for Alzheimer's disease and dementia patients and caregivers. This article examines the dissonance between the needs and burdens of Alzheimer's disease patients and caregivers, research results on medical and palliative care interventions, and medicalized public policy in the Medicare home health benefit.

Thu, 07/20/2017 - 15:09

Who cares wins? Carers' experiences of assessment since the introduction of the Carers (Equal Opportunities) Act 2004

This paper examines the views of carers who have received a carer’s assessment following the introduction of the Carers (Equal Opportunities) Act 2004. The Act ensured for the first time that a carer’s desire to take part in paid work, education or training, and leisure opportunities was considered. Semi-structured interviews were undertaken with carers to illuminate their lived experiences.

Thu, 07/20/2017 - 15:09

Measuring the impact of caregiving on informal carers: a construct validation study of the CarerQol instrument.(Research)(Report)

Background: Informal caregivers provide a significant part of the total care needed by ill or disabled persons. Although informal care is often the preferred option of those who provide and those who receive informal care, caring can nevertheless be very straining. This study investigates construct validation of an instrument of the impact of caregiving, the CarerQol.

Thu, 07/20/2017 - 15:09

Psychosocial needs of informal carers of persons with schizophrenia: exploring the role of nurses

Introduction: In Spain and the United Kingdom, more than 80% of people with schizophrenia are cared for by informal carers who are at risk of experiencing chronic stress. If this stress is not dealt with in time, a more serious disorder could develop. The present article aims to explore the role of nursing in this group of carers and attempts to answer the question: to what extent do nurses' views of their role affect their practice with carers?

Thu, 07/20/2017 - 15:09

Respite care for caregivers and people with severe mental illness: literature review

Aim.  The aim of this study was to review research literature over the past 10 years on respite care for people affected by severe mental illness; and identify key implications for nursing practice in provision of respite care for family caregivers of people with severe mental illness.

Thu, 07/20/2017 - 15:09

Participation of end users in the design of assistive technology for people with mild to severe cognitive problems; the European Rosetta project

In the European Rosetta project three separate, previously developed, ICT systems were improved and integrated to create one modular system that helps community-dwelling people with mild cognitive impairment and dementia in different stages of the disease. The system aims to support them in daily functioning, monitor (deviations from) patterns in daily behaviour and to automatically detect emergency situations.

Thu, 07/20/2017 - 15:09

An exploration looking at the impact of domiciliary and day hospital delivery of stroke rehabilitation on informal carers

Objectives: To explore the impact of two methods of post-hospital stroke rehabilitation on both carers' perceptions of the health services offered and their quality of life.

Setting: East Dorset Health Authority.

Subjects: Forty-six informal carers were recruited from a sample of 106, initially identified from stroke patients participating in a larger randomized controlled trial.

Design: Qualitative methods.

Thu, 07/20/2017 - 15:09

Association Between Health Education Needs and Stroke Caregiver Injury

Objectives: Many stroke caregivers are inadequately informed about stroke and its sequelae and have little preparation for the physical demands of moving, lifting, and handling often required. Our objectives are to examine the association between health education needs and physical injury sustained as a result of activities related to the caregiving role. Method: A total of 276 caregivers of veterans who suffered an acute stroke event were surveyed about their information needs and injury status.

Thu, 07/20/2017 - 15:09