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Pre-menstrual syndrome in women with Down Syndrome

Background  Prevalence of pre-menstrual syndrome (PMS) may be higher in women with Down syndrome due to syndrome specific characteristics in biochemistry, psychopathology and lifestyle. Recognition of PMS may be difficult for women with intellectual disabilities and their carers.

Method  A daily diary, used to diagnose PMS with typical women, was adapted. Following its validation, the diary was completed by 33 women with Down syndrome, then adapted, and completed by a further 32 women with Down syndrome/carers.

Thu, 07/20/2017 - 15:09

Support for Alzheimer's caregivers

Objective: Information on the shortened, 20-item version of the Perceived Social Support Scale (S-PSSS) is scarce. The purpose of this study is to evaluate the psychometric properties of the S-PSSS Family (SSfa) and Friends (SSfr) subscales. Method: Because of their common coping method of social support, a cross-sectional sample of Alzheimer’s caregivers was relevant for this evaluation.

Thu, 07/20/2017 - 15:09

Education of informal caregivers in a home environment

Background: The paper is a review of relevant information from literature sources concerned with the phenomenon of education. The authors refer to education as to a process of personality development influenced by both formal educational institutions and informal environmental impact. Informal environment comprises the family, community groups, counselling facilities and friends. Due to increasing health expenditure, care is moved away from institutions. Therefore, the educational process is also encountered in patients'/clients' homes.

Thu, 07/20/2017 - 15:09

How spouses evaluate Nursing Home Placement of their demented partner: a study about the end of perseverance time

Aim: This study was about the final decision by spouses to have their demented partner placed in a nursing home. The central question was whether the admission took place in the right time in their point of view.

Method: Fourteen partners of persons with dementia evaluated the nursing home placement. They were interviewed at home using a semi-structured questionnaire. Grounded theory was used to explore the process of decision-making. In addition to the interviews, quantitative data were used from a 2-year follow-up study.

Thu, 07/20/2017 - 15:09

Burnout of caregivers: a comparison between partners of psychiatric patients and nurses

Care of a person with mental illness involves multiple burdens, possibly leading to burnout. This study compares partners of persons with schizophrenia and depression with nursing staff based on dimensions of burnout. Nursing staff and partners of patients with schizophrenia or depression were consecutively recruited from psychiatric hospitals and interviewed with the Maslach Burnout Inventory. No significant differences were found in the three dimensions of burnout (emotional exhaustion, depersonalization, and personal accomplishment) for the two groups of caregivers.

Thu, 07/20/2017 - 15:09

Global women's health: a spotlight on caregiving

Caregiving is a women's health issue globally, as many more women than men are informal caregivers. Caregiving related to gender role socialization, burden, and economic and health consequences has been discussed in the literature. Together this body of work demonstrates some positive but mainly negative consequences to the health and economic circumstances of women.

Thu, 07/20/2017 - 15:09

Stress affects carers before patient’s first visit to a memory clinic

OBJECTIVE: To measure and compare the burden on spousal carers of patients with and without dementia who were consulting a memory clinic for the first time.

Thu, 07/20/2017 - 15:09

Interventions to improve the experience of caring for people with severe mental illness: systematic review and meta-analysis

Background: Informal caregiving is an integral part of the care of people with severe mental illness, but the support needs of those providing such care are not often met.

Aims: To determine whether interventions provided to people caring for those with severe mental illness improve the experience of caring and reduce caregiver burden.

Thu, 07/20/2017 - 15:09

Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review

Objectives: To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. Data sources: Seven electronic databases were searched for the period January 1994–November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metalib®). Key journals and reference lists of selected papers were hand searched. Review methods: Included studies were peer-reviewed journal articles presenting original research.

Thu, 07/20/2017 - 15:09

Ill health in the family: the intersection of employment and caring across households from four ethnic groups

The employment rates of both disabled people and those from minority ethnic groups are subject to substantial UK policy attention. In this paper we set out to enhance understanding of the relationship with the labour market for those living with long-term illness and their family members. We explore the role of family caring responsibilities and ethnicity in shaping patterns of employment participation. We do this by investigating the experiences of those from four different ethnic groups and using a mixed qualitative and quantitative approach.

Thu, 07/20/2017 - 15:09