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How family carers view hospital discharge planning for the older person with a dementia

This study reports on the experiences of 25 family carers of the hospital discharge planning process for their family member with a dementia. Analysis of the data indicates that the needs of family carers were not always addressed in the hospital discharge process and that discharge planning and execution is in need of improvement.

Thu, 07/20/2017 - 15:09

Should we embed randomized controlled trials within action research: arguing from a case study of telemonitoring

Background: Action research (AR) and randomized controlled trials (RCTs) are usually considered to be theoretically and practically incompatible. However, we argue that their respective strengths and weaknesses can be complementary. We illustrate our argument from a recent study assessing the effect of telemonitoring on health-related quality of life, self-care, hospital use, costs and the experiences of patients, informal carers and health care professionals in two urban hospital services and one remote rural primary care service in New Zealand.

Thu, 07/20/2017 - 15:09

Evaluating the needs of dementia patients' caregivers in Greece: A questionnaire survey

Aim: The aim of this study was to explore the needs of dementia patients’ caregivers throughout Greece in order to use the acquired data for designing a comprehensive national dementia strategy. Methods: The work was carried out in Athens Alzheimer Association’s Day Care.

Thu, 07/20/2017 - 15:09

Self-Care Hub in Kirklees

Kirklees Council has taken up the strategic challenge to develop a Self-Care Hub, making the best use of technology to support local citizens living with a variety of long-term health conditions (LTCs). With increasing pressure on budgets and time, some service users with a LTC may see professionals for as little as an hour a year. It is therefore important to facilitate more self-care by service users.

Thu, 07/20/2017 - 15:09

The value of carers in mental health research

Purpose: The purpose of this paper is to assess the impact of a mental health carers’ research reference group on mental health research in the Heart of England region. Design/methodology/approach: The methodology was a co-produced participatory evaluation, and the research was co-produced by the group. The design involved a literature review of carers’ involvement in UK mental health research, and collection of secondary data (group records) and primary data from researchers, group members, and facilitators. Analysis was initially thematic, then synthesised.

Thu, 07/20/2017 - 15:09

Towards an understanding of the lives of families affected by stroke: a qualitative study of home carers

Aims and objectives.  To explore the personal experiences of carers of stroke survivors and to elicit their views and opinions of what constitute the major issues and concerns of people in their situation.

Background.  The unexpected nature of stroke can propel people into the role of carer with little or no warning. Some carers of stroke survivors suffer from considerable stress and a range of psychological and physical disorders.

Design.  A small-scale qualitative study of experienced carers of stroke survivors.

Thu, 07/20/2017 - 15:09

Working in partnership with family carers: the importance of learning from carers' experiences

Purpose – This paper aims to discuss professionals working in partnership with family carers and the importance of learning from their experiences in designing and delivering support to themselves and people with dementia. 

Design/methodology/approach – Working in partnership with carers is a key goal of policy and practice. This paper demonstrates how this can work in practice. 

Thu, 07/20/2017 - 15:09

'Tinged with bitterness': re-presenting stress in family care

The provision of care within families, and specifically the difficulties within such relationships, has become the focus of much research, legislation and debate in recent years. This paper explores carers' and carees' talk about 'stress', home-based care. Carers' and carees' accounts are presented to theorise the construction of difficulties in the present relationship--focusing in particular on the taking up of or resistance to roles and responsibilities within the family.

Thu, 07/20/2017 - 15:09

The oldest carers: A narrative review and synthesis of the experiences of carers aged over 75 years

As populations age, numbers of older carers are increasing. These carers play a vital role in supporting others, often partners or spouses with dementia.

Thu, 07/20/2017 - 15:09

Predicting mental health outcomes in female working carers: a longitudinal analysis

This study investigated the factors contributing to psychological distress and positive affect over time in female working carers of older people. Questionnaires (including measures of work-related, care-related, interpersonal and psychological aspects of working and caring) were distributed to 275 female working carers in the UK, the majority of whom were working as nurses in the National Health Service. In cross-sectional analyses, higher work stress and work demands predicted higher psychological distress among respondents.

Thu, 07/20/2017 - 15:09