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‘What I want to do is get half a dozen of them and go and see Simon Cowell’: Reflecting on participation and outcomes for people with dementia taking part in a creative musical project

This paper presents the findings from an evaluation of a creative musical project led by Scottish Opera. The project included people with dementia and their carers in the development, writing, design and performance of a musical production about their experiences of love. The project involved professional singers, artists and choreographers from the opera company. Activities involved practice sessions and performances.

Thu, 07/20/2017 - 15:08

Consumers in charge of care: The Dutch personal budget and its impact on the market, professionals and the family

One of the icons of the Dutch welfare state reforms is the Personal Budget. With the introduction of this budget, care patients now have become consumers. They can manage their own budget and employ a care worker who cares according to the cared-for's wishes. The Personal Budget intends to create a market of care, as well as a shift of balance of power from professionals to care receivers. In practice, the market has not come yet. Instead, the majority of budget holders employ a family member. This is important as it gives recognition to informal carers.

Thu, 07/20/2017 - 15:08

Reconciling employment with caring for a husband with an advanced illness

Background: Little is known about combining work with caring for a person with advanced illness. This is important given the increasing number of women in the workforce and current policy seeking to increase care in the community. The aim of this paper was to explore the meaning of work for women caring for a husband with an advanced illness and the consequences of combining these two roles.

Thu, 07/20/2017 - 15:08

Older people and falls: health status, quality of life, lifestyle, care networks, prevention and views on service use following a recent fall

Aim and objective.  This study has investigated older people’s experiences of a recent fall, its impact on their health, lifestyle, quality of life, care networks, prevention and their views on service use.

Background.  Falls are common in older people and prevalence increases with age. Falls prevention is a major policy and service initiative.

Design.  An exploratory, qualitative design involving two time points.

Thu, 07/20/2017 - 15:08

‘Not that I want to be thought of as a hero’: Narrative analysis of performative masculinities and the experience of informal cancer caring

Providing care to a partner with cancer can have a significant impact on a carer’s well-being and experience of subjectivity. However, there is little research examining how men experience the role of cancer carer, and in particular, how they negotiate constructions of gender in this role. This paper draws on a single case study of a heterosexual man caring for his partner, and conducts a narrative analysis of the construction and performance of masculine subjectivity.

Thu, 07/20/2017 - 15:08

Electronic tagging of people with dementia who wander

Once again the issue of using electronic tagging to safeguard older people who wander has attracted media attention. It is tempting to see the arguments as simply two sided—one side stressing the need to ensure safety and the other waving the banners of civil liberties and human rights. We think that this is not simply a factual matter but one that touches important values to do with respect for people. The correct position, therefore, is to face the complex dilemma.

Thu, 07/20/2017 - 15:08

Working carers in Poland - successful strategies for reconciliation of work and care of an older adult

This paper focuses on the possible methods and measures that individual Polish informal carers utilize in order to manage the double burden of work and care. The strategies they use are understood as conscious and systematized ways of tackling the everyday obligations in order to successfully reconcile different duties. Based on interviews with working carers (N=58), the strategies they invented (either intentionally or accidentally) were intended to remedy the stress resulting from multiple conflict situations in everyday life.

Thu, 07/20/2017 - 15:08

Informal Caring and Labour Market Outcomes Within England and Wales

Drinkwater S. Informal caring and labour market outcomes within England and Wales, Regional Studies. Within-country analysis of the links between informal care provision and labour market outcomes has been limited even though there are wide regional variations in informal caring. This issue is important because areas with the highest levels of informal caring typically have relatively low economic activity and employment rates.

Thu, 07/20/2017 - 15:08

Life satisfaction among informal caregivers in comparison with non-caregivers

Being a caregiver with responsibility for someone with reduced health compared with not being a caregiver may mean different views of life satisfaction. Knowledge of what leads to reduced life satisfaction in caregivers may be helpful in interventions. Informal caregivers gainfully employed or not, aged 50–89 years, were studied with regard to life satisfaction depending on the extent of caregiving to identify types of social support of value for caregivers.

Thu, 07/20/2017 - 15:08

Reactions to caregiving of frail, older persons predict depression

Reactions to caregiving and depression affect a carer's ability to continue in their caring role. This paper examines the relationship between reactions to caregiving and depression in carers of frail, older people and is a cross-sectional study of carers of community-living people (70 years), identified as frail, who completed a postal questionnaire. Reactions to caregiving were evaluated using the Caregiver Reaction Assessment. Anxiety and depression symptoms were measured using the Hospital Anxiety and Depression Scale.

Thu, 07/20/2017 - 15:08