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A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer

This paper reports on data from the Regional Study of Care for the Dying, conducted in 1990, and compares symptoms, care and service utilization for patients with chronic lung diseases (CLD) and lung cancer (LC) in the final 12 months of life. Post-bereavement structured interviews were conducted with informal carers of 449 LC patients and 87 CLD patients. The LC patients were significantly younger than those with CLD (P = 0.001) and these respondents were more likely to have been a spouse (P = 0.034).

Thu, 07/20/2017 - 15:18

Evaluating automated goals for home care support

Purpose – The purpose of this paper is to evaluate an approach to automating goals for supporting home care, with a view to understanding user experience when defining such goals and hence identifying improvements that could be made to the approach.

Thu, 07/20/2017 - 15:18

Professional staff and carers' views of an integrated mental health service for adults with learning disabilities

A study was undertaken to investigate the views of professional staff and paid and informal carers' views of a new integrated mental health service for people with learning disabilities.

Twenty semi-structured interviews were conducted and transcribed. Most staff and carers were generally satisfied with the in-patient facility. However, information exchange, ward rounds and the ward environment were identified as areas requiring improvement.

Thu, 07/20/2017 - 15:17

Family fortunes.

The article informs that the community health mental health team where the author worked as a community psychiatric nurse (CPN) a few years ago had a referral from a GP for a woman in her thirties with anxiety and depression. When he went to assess this patient, he discovered that she was the daughter of a previous patient of mine--her mother having had chronic schizophrenia. Nina, the new patient, had been offered a wide range of treatments in the past but had never spoken about growing up with a mother who had schizophrenia.

Thu, 07/20/2017 - 15:17

Surrey churches host events for young carers

The article offers information on free evening play sessions entitled "My Time" offered by Dorking and Ewell United Reformed churches and Soroptimist International for young carers in England.

Thu, 07/20/2017 - 15:17

Informal carers’ experience of caring for stroke survivors

Background.  Stroke is the third most common cause of death in industrialized countries and a major cause of adult disability. However, the burden of caring for stroke survivors usually rests with family members who have neither chosen nor volunteered for the role of ‘carer’.

Aims.  This paper reports on a study which aimed to describe the experience of caring for a stroke survivor at one year after stroke in Scotland.

Thu, 07/20/2017 - 15:17

Caregiving for the elderly family members as a challenge for men - The hidden and forgotten carers in ageing Europe

The purpose of our research was to investigate male caregiving via a status of being hidden and forgotten in East-Central Europe, where caregiving itself had only lately been emancipated, and only as provided by women. In Poland and in other European countries the gender bias is clear: men provide less care than women, the care is less intensive and of a different character. By desk research, own research interpretation and literature review, the paper addressed informal, family caregiving towards frail older adults performed by men.

Thu, 07/20/2017 - 15:17

Dementia care: Intersecting informal family care and formal care systems

Dementia is one of the major causes of disability and dependence amongst older people and previous research has highlighted how the well-being of people with dementia is inherently connected to the quality of their relationships with their informal carers. In turn, these carers can experience significant levels of emotional stress and physical burden from the demands of caring for a family member with dementia, yet their uptake of formal services tends to be lower than in other conditions related to ageing.

Thu, 07/20/2017 - 15:17

The Simon Heng column

Presents views on social care among children. Overview of a 2005 report by The Education Network about young carers; Decision to be a good parent upon the acquisition of a disability; Reasons why parents should impose responsibilities on their children when they risk damaging their futures.

Thu, 07/20/2017 - 15:17

Keeping carers healthy: the role of community nurses and colleagues

Carers form a substantial proportion of the patients seen by primary care professionals, but their health needs are often overlooked. By recognizing and addressing the needs of the carer as well as the patient, primary care staff (including practice, community and district nurses) can protect the physical and mental health of both. Staff can start by developing simple systems for identifying and recording both patients who are carers, and patients who have carers. Primary health professionals may be able to identify specific opportunities for checking on carers’ health, e.g.

Thu, 07/20/2017 - 15:17

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