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The nature of youth care tasks in families experiencing chronic illness/disability: Development of the Youth Activities of Caregiving Scale (YACS)

The purpose of this study was to develop an empirically derived multi-item scale of care tasks performed by young people in the context of family illness/disability: the Youth Activities of Caregiving Scale (YACS). A total of 135 youngsters aged 10–24 years with an ill/disabled family member completed questionnaires. Factor analyses performed on the YACS yielded four factors, instrumental care, social/emotional care, personal/intimate care and domestic/household care, accounting for 57.78% of the variance. The internal reliabilities of all factors ranged from 0.74 to 0.92.

Thu, 07/20/2017 - 15:16

The eCare Client Impact Survey (eCCIS) - Developing a new Tool for assessing Client Impacts of Telehealthcare

Telehealthcare is an increasingly popular option for health and social care organisations providing care to people in their own homes, principally providing the means to improve both the quality and efficiency of care services. However, the evidence-base for the impacts of telehealthcare in terms of general quality of life , well-being and satisfaction for older people and informal carers remains patchy. We argue that the impacts of telehealthcare lie in certain specific areas not sufficiently covered by existing measures.

Thu, 07/20/2017 - 15:16

Social risk factors for falls among rural Nigerian community-dwelling older adults

Aim: Reports on social risk factors for falls are scarce. This study explored the associations of selected sociodemographic and health variables with falls among rural Nigerian community-dwelling older adults.

Methods: The present cross-sectional study involved 131 community-dwelling older adults (84 women and 47 men) recruited at an outreach center. Demographic (age, sex and marital status), social (frequency of visiting relations and friends, and number of consistent informal carers) and health (number of comorbid conditions) variables were recorded.

Thu, 07/20/2017 - 15:16

Development of the Motor Neuron Disease Carer Questionnaire

Our objective was to develop a validated questionnaire that can measure the extent to which dimensions of caring affect the health of carers of patients with motor neuron disease. An initial 190-item questionnaire was developed from in-depth interviews, focus groups and two pilot studies with carers. Factor analysis was applied to the data obtained from a large survey in the UK that identified the underlying dimensions of caring. The newly formed scales were tested for reliability using Cronbach's α, and for construct validity.

Thu, 07/20/2017 - 15:16

Perception of social support in hospitalized patients

Grounds: The aim of our work has been to value the social support realised in 64 year old patients as web as in their informal carers in a Hospital Service of Traumatology and, at the same time, to know the specific characteristics in our work. Methods: all the variables have been taken thyrough a triple questionnaire structured in a total of 127 patients, using the questionnaire Duke-UNC to measure the functional social support. Results: For ill people, the punctuation of perceived social support was 44,6 on average; the informal carers presented an average global perception of 43,9.

Thu, 07/20/2017 - 15:16

Evaluation of a resilience-based intervention for children of parents with mental illness

Objective: The purpose of the present study was to evaluate the effectiveness of a group psychosocial intervention for children (aged 12–18) of a parent with mental illness (copmi).

Thu, 07/20/2017 - 15:16

Young Carers Day 2007

The article reports on the Young Carers' Day 2007 outing organized by the Essex Council in England for young carers and their families. The city council's adolescent services has collaborated with young carers' groups in organizing the event. Over 300 young carers and their families have attended the event at the end of June 2007. It notes that there are 5,000 young carers in the city.

Thu, 07/20/2017 - 15:16

An experimental study on the effectiveness of a mutual support group for family caregivers of a relative with dementia in mainland China

When caring for an older relative with dementia, family members experience considerable distress and burden. Literature reviews show that supportive group interventions for these caregivers have significant positive effects on improving their distress and quality of life, but not consistent and conclusive. Limited research is found in Asian populations. This study tested the effectiveness of a 12-session bi-weekly mutual support group program for Chinese family caregivers of a relative with dementia in Hong Kong, when compared with standard family support service.

Thu, 07/20/2017 - 15:16

Informal care of people with mental disorders: Does the Austrian long-term care system provide adequate support?

OBJECTIVE: The Austrian long-term care system covers all types of long-term chronic diseases and handicaps and is based on a payment for care scheme. The benefit is directed to care recipients, who are - in the outpatient sector - largely free in how to use it. Herewith, the payment for care scheme also has a significant impact on the provision of informal care. The paper studies this impact for the particular case of informal care provided for mentally ill people.

Thu, 07/20/2017 - 15:16

Carers' assessment, skills and information sharing (CASIS) trial: A qualitative study of the experiential perspective of caregivers and patients

Background: Families express a need for guidance in helping their loved ones with anorexia nervosa (AN). Guided self-help interventions can offer support to caregivers.

Thu, 07/20/2017 - 15:16

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