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Family care

Family care: a conceptual clarification: challenges for future health policy and practice

The healthcare problems of individuals are often solved without the intervention of professionals through family caregiving. Population ageing, a shortage of professionals and cost-control in the healthcare sector1, increase the importance of family caregiving in most west-European countries, where comparative research has shown that national governments no longer take full responsibility for care services.2 The involvement of family caregivers, however, is not without problems.

Thu, 07/20/2017 - 15:15

Part 2: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008)

Family caregivers are crucial for supporting home death. We reviewed published qualitative research on home-based family caregiving at end of life (1998—2008), synthesizing key findings and identifying gaps where additional research is needed. Multiple databases were searched and abstracts reviewed for a focus on family caregiving and palliative care; full articles were reviewed to extract data for this review. In total, 105 articles were included.

Thu, 07/20/2017 - 15:15

Family caregivers' compassion fatigue in long-term facilities

A Canadian study offers staff in the UK insight into the feelings of hopelessness and sadness that can engulf relatives assisting with care, say Beth Perry and colleagues

Aim: The aim of this study was to explore the presence of compassion fatigue in family carers who assist staff with care of older relatives in long-term settings.

Method: arrative data were collected through observation and conversations with five purposively selected family carers.

Thu, 07/20/2017 - 15:15

Family's difficulty scale in end-of-life home care: A new measure of the family's difficulties in caring for patients with cancer at the end of life at home from bereaved family's perspective

Background: The aim of this study was to develop a tool to measure the family's difficulties in caring for cancer patients at the end of life at home: Family's Difficulty Scale in end-of-life home care (FDS).

Methods: The draft of the FDS was derived from a pilot interview survey and literature reviews. The questionnaires were sent to 395 bereaved family caregivers whose family members were patients with terminal cancer receiving home service.

Thu, 07/20/2017 - 15:15

Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008)

The changing context of palliative care over the last decade highlights the importance of recent research on home-based family caregiving at the end of life. This article reports on a comprehensive review of quantitative research (1998—2008) in this area, utilizing a systematic approach targeting studies on family caregivers, home settings, and an identified palliative phase of care (n = 129). Methodological challenges were identified, including: small, non-random, convenience samples; reliance on descriptive and bivariate analyses; and a dearth of longitudinal research.

Thu, 07/20/2017 - 15:14

Caring in later life: reviewing the role of older carers

There has been growing recognition of the important role that carers play in enabling vulnerable adults to remain in the community. Recent legislation has recognised the role of the family carers and encouraged the development of support services. Considerable research has been undertaken to identify the needs and the experiences of the carers in general but little specific attention has focused on older carers. This is despite the fact that they have their own unique needs which may have been hidden in previous research.

Thu, 07/20/2017 - 15:14

Nurses' experiences of caring for their own family members

There is a wealth of literature that addresses the needs of informal caregivers and the needs of health professionals caring for someone with a life-threatening illness. However, there is a paucity of research that deals with nurses who are caring for their own relative who has a life-threatening illness. This qualitative study explores the information needs, support systems available, and the impact that this experience has upon the nurse's quality of life.

Thu, 07/20/2017 - 15:13

Mixed blessings: long-term care benefits in Germany

This chapter opens with the movement to long-term care benefits in Germany in 1994 with a two-tiered system of employment-related, contribution-based long-term care insurance (LTCI) and a last resort of tax-funded social assistance. The goals were to reduce the financial burden on the states and municipalities, lessen poverty for care clients, increase long-term care services, expand home- and community-based services and support informal caring, and to prevent or delay institutionalisation.

Thu, 07/20/2017 - 15:13

A meta-analysis of interventions for informal stroke caregivers

The purpose of this study is to examine the effectiveness of the interventions for improving mental health of caregivers of people with stroke by synthesizing individual studies. A meta-analysis was performed to summarize findings of intervention studies of caregivers of elderly stroke patients. Additionally, a sensitivity analysis and a publication bias were tested.

Thu, 07/20/2017 - 15:13

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