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Building Carer Friendly Communities: Research report for Carers Week 2016

The Carers Week 2016 research report presents key findings on Carer Friendly Communities across five themes: community, health, employment, education and older carers. 

The research for this report was carried out as part of Carers UK annual State of Caring Survey. A total of 6,149 carers and former carers responded to Carers UK’s annual State of Caring Survey between March and April 2016.

Wed, 08/15/2018 - 13:12

Factors influencing practitioner adoption of carer-led assessment in palliative homecare: A qualitative study of the use of the Carer Support Needs Assessment Tool (CSNAT)

Introduction: Informal caregivers play a pivotal role in supporting patients approaching the end of life. The Carer Support Needs Assessment Tool (CSNAT) is designed to facilitate person-centred assessment and support through a process that is practitioner-facilitated, but carer-led. This study explored practitioners’ experiences of implementing the CSNAT in palliative homecare. Methods: We conducted qualitative interviews/focus groups with 20 practitioners in one UK hospice homecare service (18 nurses, two healthcare assistants) before and after the implementation of the CSNAT.

Wed, 06/06/2018 - 10:04

Towards a culturally acceptable end-of-life survey questionnaire: a Bengali translation of VOICES

Aim To assess the cultural acceptability and appropriateness of an English end-of-life survey questionnaire translated into Bengali for use in east London.

Study design Group discussions with informal carers (n=3 groups) and professionals (n=1 group).

Thu, 07/20/2017 - 15:24

Carer preferences in economic evaluation and healthcare decision making

The preferences of informal carers are important to capture for healthcare decision making. This paper discusses how these preferences relate to the economic evaluation of health and care interventions. Three main issues are highlighted. First, there is a need to consider carer impact routinely in economic evaluations. Second, more debate is required around the ethical issues stemming from the inclusion of interdependent preferences in healthcare decision making.

Thu, 07/20/2017 - 15:24

Formal and informal long-term care and the role of family carers: Czech Republic

The article discusses developments in long-term care and the availability of support for informal carers in the Czech Republic. Population forecast suggests that the process of demographic ageing in the Czech Republic will accelerate with the ageing of the baby boom cohorts of the 1940s and 1950s. Health and social policy has to address challenges of availability and quality of long-term care, and to develop support services to meet the needs of an ever growing number of older people and their families.

Thu, 07/20/2017 - 15:24

All Work and no Play? Understanding the Needs of Children with Caring Responsibilities

This article draws on research with children who provide care for parents with serious mental health problems and signals ongoing research that uses photographic participation methods with these groups of vulnerable children.

Thu, 07/20/2017 - 15:24

The medicines management needs of carers during an episode of mental health crisis

The article reviews the report "National Mental Health Development Unit 2010" highlighting the importance of involving carers particularly in crisis resolution and home treatment teams (CRHT), in managing medicines during a mental health crisis. The authors note the report's recommendation of developing training packages to help carers understand issues and enhance their understanding of mental health conditions and treatment options. They also recommend investigating the needs of young carers.

Thu, 07/20/2017 - 15:24

A randomized controlled trial of a hospital at home service for the terminally ill

This study evaluated the impact of a Cambridge hospital at home service (CHAH) on patients' quality of care, likelihood of remaining at home in their final 2 weeks of life and general practitioner (GP) visits. The design was a randomized controlled trial, comparing CHAH with standard care. The patient's district nurse, GP and informal carer were surveyed within 6 weeks of patient's death, and 225 district nurses, 194 GPs and 144 informal carers of 229 patients responded. There was no clear evidence that CHAH increased likelihood of remaining at home during the final 2 weeks of life.

Thu, 07/20/2017 - 15:24

Assessing the needs of carers

With the support of informal carers now recognised as a priority if people with significant needs are to live at home, Lesley Adcock examines the care given to an individual patient and her husband upon her discharge from hospital following a stroke injury.

Thu, 07/20/2017 - 15:24

Using the COPE assessment tool with informal carers of people with dementia in New Zealand

AIMS: To evaluate the validity of the COPE index (CI) carer assessment tool within a study exploring perceptions of carer support, health, and wellbeing. To assess the utility and acceptability of the CI with health practitioners and informal carers of people with dementia, following the European COPE protocol.

Thu, 07/20/2017 - 15:24

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