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Dying from cancer in developed and developing countries: lessons from two qualitative interview studies of patients and their carers

Objective: To describe the experiences of illness and needs and use of services in two groups of patients with incurable cancer, one in a developed country and the other in a developing country.

Design: Scotland: longitudinal study with qualitative interviews. Kenya: cross sectional study with qualitative interviews.

Settings: Lothian region, Scotland, and Meru District, Kenya.

Thu, 07/20/2017 - 15:22

The social construction of risk by community psychiatric nurses and family carers for people with dementia

This paper examines the conversational and discursive processes through which situations are constructed as a risk by informal carers and community psychiatric nurses working with people who have dementia. The data were taken from 24 tape recordings of domiciliary meetings between primary informal carers for people with dementia and their community psychiatric nurse (CPN). Data were analysed using techniques developed from conversation analysis and discourse analysis. The analysis identifies four stages associated with the construction of risk by informal carers and CPNs.

Thu, 07/20/2017 - 15:22

Care giving offspring to aging parents:: How it affects their marital relations, parenthood and mental health

The study examined the effect of direct and indirect stresses on the mental health of offspring caring for an aging parent. The study is based on Pearlin, Lieberman, Menaghan, and Mullan's (1981) Stress Development Model. The research examined 345 subjects, men and women aged 40-59 who filled a questionnaire sent by post within their workplace. The research findings show that the various stresses of the caregiver role are mutually connected and have a significant positive effect on the mental health of caregiving offspring.

Thu, 07/20/2017 - 15:22

Stressors and common mental disorder in informal carers – An analysis of the English Adult Psychiatric Morbidity Survey 2007

This study investigates potential explanations of the association between caring and common mental disorder, using the English Adult Psychiatric Morbidity Survey 2007. We examined whether carers are more exposed to other stressors additional to caring – such as domestic violence and debt – and if so whether this explains their elevated rates of mental disorder. We analysed differences between carers and non-carers in common mental disorders (CMD), suicidal thoughts, suicidal attempts, recent stressors, social support, and social participation.

Thu, 07/20/2017 - 15:22

The experiences of being close relatives and informal carers of mentally ill Iraqi refugees: a qualitative study

In ethnic minority groups, family members often play an absolutely central role in providing care for their mentally ill relatives. The aim of the study was to explore how the relatives of mentally ill Iraqi refugees experience their role as informal caregivers. Semi-structured qualitative interviews were conducted with seven relatives of Iraqi mental health outpatients. The study indicated that Iraqi relatives felt severely burdened in their everyday life.

Thu, 07/20/2017 - 15:22

Case management in primary palliative care is associated more strongly with organisational than with patient characteristics: results from a cross-sectional prospective study

Background: Case managers have been introduced in Dutch primary palliative care; these are nurses with expertise in palliative care who offer support to patients and informal carers in addition to the care provided by the general practitioner and home care nurses. This study aims to describe support and investigate what characteristics of patients and the organizational setting are related to the number of contacts and to the number of times topics are discussed between the case manager and patients and/or informal carers.

Thu, 07/20/2017 - 15:21

Caregiver burden in an elderly population with depression in São Paulo, Brazil

Background: Mental disorders are among the most prevalent chronic conditions in old age, depression being the most widespread. The aim of this study was to examine the burden and distress reported by carers of elderly patients with depression. Method: Patients aged 60 or over starting outpatient treatment for depression and their relatives were included. Patients were assessed for the severity of depressive symptoms, behaviour and mood disturbance, and abilities of daily living.

Thu, 07/20/2017 - 15:21

Schools recognised for young carer support in new national awards

The article discusses the British Young Carers in School program which is designed to provide information, staff training, and other resources to schools to help them improve the support which they provide to students who have caregiving responsibilities. It notes the program is led by the nonprofit groups Carers Trust and The Children's Society and cites an award under the program received by Applemore College secondary school, Hampshire, England.

Thu, 07/20/2017 - 15:21

Bringing Young Carers Out of the Shadows

The article discusses the difficulties experienced by young carers and how to develop and strengthen their caregiver skills and experience. It says that young carers are children, adolescents, and younger members of the family below the age of 25 who has become the primary caregiver of the family and takes adult responsibilities in managing the family due to parental absence. It says that due to their young age, most young carers experience psychological and physical stress in their lives, social isolation from their peers, and educational delays.

Thu, 07/20/2017 - 15:21

Adapting a SSKIN bundle for carers to aid identification of pressure damage and ulcer risks in the community

If pressure damage is identified and addressed at an early stage, it may be reversed. Otherwise, it may quickly progress into a serious deep tissue injury. In the community, most daily skin care is undertaken by formal and informal carers. They therefore need to know how to identify signs that pressure ulcers may develop and what immediate actions to take. NICE guidance on pressure ulcer prevention is too extensive to be a simple tool for carers, so a SSKIN bundle was adapted for community use.

Thu, 07/20/2017 - 15:21

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