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Provider Views on Integrating Family Caregivers in Clinical Encounters (RP413)

Objectives: • Critique, from the view of providers, the potential benefits and drawbacks of integrating family caregivers into clinical encounters. • Describe provider attitudes, beliefs and ethical and clinical considerations that may affect the integration of family caregivers into clinical encounters.  Importance: Family caregivers frequently accompany patients to clinical encounters, particularly when dealing with serious illnesses. Family caregivers, however, are not often invited to be active participants in clinical encounters.

Sun, 12/13/2020 - 17:09

Protocol for an embedded pragmatic clinical trial to test the effectiveness of Aliviado Dementia Care in improving quality of life for persons living with dementia and their informal caregivers

Persons living with Alzheimer's disease and related dementias (ADRD) frequently experience pain and behavioral and psychological symptoms of dementia (BPSD) which decrease quality of life (QOL) and influence caregiver burden. Home healthcare professionals however may underrecognize or lack the ability to manage BPSD. This protocol describes an ADRD palliative quality assurance performance improvement program for home healthcare, Aliviado Dementia Care-Home Health Edition. It includes training, mentoring, and a toolbox containing intervention strategies.

Sun, 12/13/2020 - 17:01

Perceptions of health and well-being among older adult caregivers: Comparisons of current caregivers with former and never caregivers

• Current caregivers had less health satisfaction than never caregivers. • Former caregivers experienced better well-being than current caregivers. • There were no differences in depression scores amongst caregiver types. • Income is an important contributor to health outcomes across caregiver types. Older adults with physical and/or cognitive limitations frequently rely on informal caregivers who are often other older adults.

Sat, 12/12/2020 - 14:49

Perceived social support and health-related quality of life in older adults who have multiple chronic conditions and their caregivers: a dyadic analysis

Patients who have multiple chronic conditions (MCCs) and their informal caregivers experience poorer health-related quality of life (HRQOL). Perceived social support has been shown to influence HRQOL. This study aimed at identifying the differences between patients' and caregivers' physical and mental HRQOL; and determining the association between their perception of social support from different sources, and their own and their dyad partner's HRQOL. Patients with MCCs and their caregivers (345 dyads) were enrolled in a multicenter cross-sectional study conducted in Italy.

Sat, 12/12/2020 - 14:34

Outcomes of physical activity for people living with dementia: qualitative study to inform a Core Outcome Set

Background The need for a Core Outcome Set to evaluate physical activity interventions for people living with dementia, across stages of disease and intervention settings has been established. This qualitative study precedes the consensus phase of developing this Core Outcome Set and aims to: (i) compare the outcomes identified by patients, carers and professionals to those previously reported in the literature; (ii) and understand why certain outcomes are considered important.

Sat, 12/12/2020 - 12:46

Neighbourhood relationships moderate the positive association between family caregiver burden and psychological distress in Japanese adults: a cross-sectional study

Objectives: Family caregiver burden is associated with higher psychological distress. However, little is known about the impact of neighbourhood relationships on caregivers' psychological distress. We examined whether neighbourhood relationships of caregivers moderate the association between family caregiver burden and psychological distress. Study design: This was a cross-sectional study.

Sat, 12/12/2020 - 12:14

Interventions to Support Family Caregivers in Pain Management: A Systematic Review

Context: Family caregivers encounter many challenges when managing pain for their loved ones. There is a lack of clear recommendations on how to prepare caregivers in pain management. Objectives: To evaluate existing interventions that support family caregivers in providing pain management to patients with all disease types.

Fri, 12/11/2020 - 13:33

Insomnia and changes in alcohol consumption: Relation between possible complicated grief and depression among bereaved family caregivers

Background: Bereaved individuals are known to have greater health risks, such as insomnia, excessive alcohol intake, and depression. However, few studies have investigated the relation between these risks and bereavement outcomes, namely complicated grief (CG) and major depressive disorder (MDD). This study aimed to assess the relation between insomnia, changes in alcohol consumption, and CG or MDD.

Fri, 12/11/2020 - 12:43

Information seeking behavior and perceived health literacy of family caregivers of persons living with a chronic condition. The case of spinal cord injury in Switzerland

Objective: To examine the information seeking behavior and health literacy of caregivers of individuals living with spinal cord injury in Switzerland and their impact on the caregiving experience. Methods: Nationwide survey of family caregivers of people with spinal cord injury (N = 717). Caregivers aged 18+ who assisted with activities of daily living were included. Self-reported information seeking behavior, including topics, preferred sources, and health literacy were assessed and analyzed.

Fri, 12/11/2020 - 12:29

Impact of visuospatial neglect post-stroke on daily activities, participation and informal caregiver burden: A systematic review

Visuospatial neglect (VSN) is a common cognitive disorder after stroke. The primary aim of this systematic review was to provide an overview of the impact of VSN in 3 aspects: (1) activities of daily living (ADL), (2) participation, and (3) caregiver burden. The second aim was to investigate the differences in studies focusing on populations with mean age < 65 versus ≥ 65 years. PubMed, EMBASE, Web of Science, Cochrane Library, Emcare, PsychINFO, Academic Search Premier and CENTRAL were searched systematically. Quality was assessed with the Mixed Methods Appraisal Tool.

Fri, 12/11/2020 - 10:48

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