Skip to content

Toggle service links
Subscribe to RSS - Elsevier

You are here

  1. Home
  2. Elsevier

Elsevier

Inventory of Overburden in Alzheimer's Patient Family Caregivers with no Specialized Training

Background/Objective: Alzheimer-type dementia is one of the most frequent causes of dependence in an aging population, which combines with a considerable demand for care. Furthermore, when the caregiver is a family member or person without specialized training, such care impacts on that person's health. The Inventory of Overburden in Alzheimer's Patient Family Caregivers with no Specialized Training (IPSO-CA24) was designed to find out the needs of these caregivers and evaluate the caregiver's burden or distress.

Mon, 09/10/2018 - 14:21

Family Caregivers' Preparations for Death: A Qualitative Analysis

Context: Many family caregivers are not prepared for the death of their family member or friend. Palliative care services tend to emphasize the patients' preparation for death rather than caregivers' preparation for, or living after, death. Caregivers' perspectives on anticipating and preparing for death are under-researched, despite preparation being associated with better bereavement outcomes. Objectives: The objective was to explore family caregivers' preparations for death.

Mon, 09/10/2018 - 10:33

Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey

Family carers have a central role in the care and support of people with MND and face the challenges of the disease from diagnosis to progression and the multiple losses of MND, but their support needs are often neglected. This study aimed to investigate the experiences of family carers at the time of diagnosis and their satisfaction with receiving the news. An anonymous postal survey was facilitated by all MND Associations in Australia (2014) and 190 family carers completed the questionnaire. The questions centred on the SPIKES protocol for communicating bad news.

Fri, 08/24/2018 - 12:45

Understanding patient and relative/carer experience of hip fracture in acute care: A qualitative study protocol

Background: This paper presents a qualitative study protocol focusing on older peoples' experience of recovery in acute care following hip fracture and also the experiences of their family or informal carers. There is limited evidence regarding older people and their relatives'/carers' experiences of recovery in acute care.; Aim: The study had two research questions.

Wed, 08/22/2018 - 14:44

Do stress and support matter for caring? The role of perceived stress and social support on expressed emotion of carers of persons with first episode psychosis

Background: Caring for a person with first episode psychosis (FEP) is a challenging and distressing task for the carers. The carers' stress in the early stage of psychosis can increase their expressed emotion (EE) while social support is hypothesized to decrease EE.

Wed, 08/22/2018 - 14:24

A randomized trial of a web-based platform to help families manage dementia-related behavioral symptoms: The WeCareAdvisor™

Dementia-related behavioral symptoms are challenging clinical features occurring across etiologies and disease progression. They are associated with increased healthcare utilization, nursing home placement, family upset and burden. Families typically manage behavioral symptoms without requisite knowledge, skills and guidance. We designed WeCareAdvisor™ as an easy-to-use, evidence-informed web-based platform.

Thu, 08/16/2018 - 16:15

Experts' perspectives on SwissDRG: Second class care for vulnerable patient groups?

  • Swiss hospital experts are aware of particularly vulnerable patient groups.
  • Vulnerable patient groups are insufficiently represented in the new SwissDRG tariff structure.
  • Swiss hospitals are confronted with the challenges that vulnerable patients pose.
  • Experts report macro, meso, and micro level measures to protect vulnerable patients.
  • Legislative measures to protect vulnerable patients do not show the desired effect.
Wed, 08/15/2018 - 15:29

Better Respiratory Education and Treatment Help Empower (BREATHE) study: Methodology and baseline characteristics of a randomized controlled trial testing a transitional care program to improve patient-centered care delivery among chronic obstructive pulm

Background: Chronic Obstructive Pulmonary Disease (COPD) is a leading cause of hospitalizations. Interventional studies focusing on the hospital-to-home transition for COPD patients are few.

Wed, 08/15/2018 - 14:48

A qualitative study of factors that influence active family involvement with patient care in the ICU: Survey of critical care nurses

Objective: Family caregiver involvement may improve patient and family outcomes in the intensive care unit.

Wed, 06/06/2018 - 12:51

Page 20 of 20