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Elsevier

Types of stroke-related deficits and their impact on family caregiver's depressive symptoms, burden, and quality of life

Background: Stroke caregiving has been associated with higher rates of caregiver burden, depression, and lower quality of life compared to non-caregivers. Little is known about relationships between stroke survivors' Cognitive/Emotional and Motor/Functional deficits and caregivers' outcomes.; Objective: To determine the relationship between stroke survivors' Cognitive/Emotional deficits and Motor/Functional deficits and caregivers' depression, burden, and quality of life.; Method: This is a retrospective secondary data analysis.

Tue, 04/13/2021 - 13:16

Short self-reported sleep duration among caregivers and non-caregivers in 2016

Introduction: Caregiving, providing regular care or assistance to family members or friends with health problems or disabilities, may affect caregivers' sleep. This study examined self-reported short sleep duration by caregiving status among US adults. Methods: Data of 114,496 respondents aged >= 18 years in 19 states, the District of Columbia, and Puerto Rico from the 2016 Behavioral Risk Factor Surveillance System were analyzed.

Tue, 04/13/2021 - 11:05

The relationship between the burden on caregivers in caring for older people and their quality of life

Older people have decreased functions, which lead to increased dependence on others, especially their families. This dependence can impose a burden on the caregivers who help with the daily needs of older people, and any resulting inability to provide care has an impact on their quality of life. This study aims to identify relationship between the burden on caregivers in caring for older people and their quality of life.

Wed, 04/07/2021 - 14:42

Rehabilitation for Cancer Patients in Inpatient Hospices/Palliative Care Units and Achievement of a Good Death: Analyses of Combined Data From Nationwide Surveys Among Bereaved Family Members

Context. In end-of-life care, rehabilitation for patients with cancer is considered to be an important means for improving patients' quality of death and dying. Objectives. To determine whether the provision of rehabilitation for patients with cancer in palliative care units is associated with the achievement of a good death. Methods. This study involved a cross-sectional, anonymous, and self-report questionnaire survey of families of patients with cancer who died in palliative care units in Japan.

Wed, 04/07/2021 - 14:27

Randomized Controlled Trial of the Caregiver Orientation for Mobilizing Personal Assets and Strengths for Self-Care (COMPASS) for Caregiving Journey: A National Family Caregiver Support Program in a Long-Term Care Insurance System

Objectives: To investigate the effects of a national support program on family caregivers for long-term care (LTC) recipients. Design: A single-blinded randomized controlled trial compared the 8-week Caregiver Orientation for Mobilizing Personal Assets and Strengths for Self-Care (COMPASS) program consisting of 6 individual inhome, 3 group support, and 2 telephone sessions with a multicomponent intervention, and a control group.

Wed, 04/07/2021 - 14:18

Psychosocial consequences of a reduced ability to eat for patients with cancer and their informal caregivers: A qualitative study

Purpose: Patients with cancer often experience a reduced ability to eat. This can have psychosocial consequences for both patients and informal caregivers. Current literature is mainly focused on patients with end stage advanced disease and cancer cachexia. This qualitative study provides new insights in the field of Psycho Oncology by exploring psychosocial consequences of a reduced ability to eat in patients in different stages of the disease and in recovery and remission.

Tue, 04/06/2021 - 17:51

Primary caregivers experience of anti-psychotic medication: A qualitative study

Background: Management of schizophrenia is now shifted to the community setting and family caregivers are the primary caregivers. Managing medications is a complex responsibility of family caregivers caring for patients with mental illness. Medication compliance contributes to improve health outcomes and reduced hospitalization for the care service users; however, little is known about attitudes and perception of family caregivers. Aims and objectives: To explore family caregivers experience towards antipsychotic medications.

Tue, 04/06/2021 - 16:47

The presence of a caregiver is associated with patient outcomes in patients with Parkinson's disease and atypical parkinsonisms

Introduction: Approximately 88% of men and 79% of women with Parkinson's disease (PD) identify an informal caregiver. Although caregivers can play a key role in supporting patients, little is known about how and whether PD patients with and without caregivers differ in terms of physical, cognitive, and mood outcomes. This study explored whether caregiver presence was associated with variations in patient presentation and outcomes in a palliative PD and atypical PD population.

Tue, 04/06/2021 - 15:02

Preferences and Experiences of Muslim Patients and Their Families in Muslim-Majority Countries for End-of-Life Care: A Systematic Review and Thematic

Background. Care for people with progressive illness should be person centered and account for their cultural values and spiritual beliefs. There are an estimated 1.7 billion Muslims worldwide, largely living in low-income and middle-income countries. Aims. This study aimed to identify, appraise, and integrate the evidence for the experiences and preferences of Muslim patients and/or families for end-of-life care in Muslim-majority countries. Design. Systematic review. Data sources.

Tue, 04/06/2021 - 14:47

Patient and caregiver outcomes at the integrated memory care clinic

• Caregivers' distress relative to their persons' delusions decreased significantly. • Caregivers' distress relative to their persons' anxiety decreased significantly. • Severity of persons' living with dementia delusions decreased significantly. • Severity of persons' living with dementia depression decreased significantly. • Total symptom severity for persons living with dementia decreased significantly.

Tue, 04/06/2021 - 12:20

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