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Parent-Child Communication in a Childhood Cancer Context: A Literature Review

This integrative literature review examines the facilitators and barriers to open and clear parent-child communication in the context of childhood cancer (for this literature review, child refers to ages 0 to 19 years). The Resilience in Illness Model (Haase et al., 2017) was employed to organize the findings and link to resilience outcomes among children with cancer. In a search of three international databases (PubMed, CINAHL, and PsycINFO), 18 studies met inclusion criteria and were selected for review.

Thu, 01/05/2023 - 15:12

Communication Challenges in Korean Families Coping With Adolescent Cancer

PURPOSE: To examine the family communication experience of Korean adolescents with cancer and their parents, including how adolescents and their parents verbally share feelings and concerns related to the adolescent's cancer diagnosis with one another, and how emotional communication affects parent-adolescent relationships and the family's coping abilities.

Thu, 01/05/2023 - 15:09

Parental experiences with a paediatric palliative care team: A qualitative study

Background: Parents of children with a life-limiting disease have to rely on themselves at home while adequate paediatric palliative care is lacking. In several countries, paediatric palliative care teams are introduced to ensure continuity and quality of care and to support the child and the family. Yet, little is known about how parents experience such multidisciplinary teams.

Tue, 12/20/2022 - 11:23

Qualitative analysis of perceived impacts on childhood food allergy on caregiver mental health and lifestyle

Background: Approximately 8% of children have food allergy. Yet, little is known about how parents cope with the burden of this disease.; Objective: This study aimed to describe the perceptions of food allergy-related mental health issues of parents of children with food allergy. Methods: Parents of children with pediatric allergist-diagnosed food allergy were recruited through allergy clinics and education centers in a large Canadian city.

Wed, 12/14/2022 - 12:31

Mothers/caregivers healthcare seeking behavior towards childhood illness in selected health centers in Addis Ababa, Ethiopia: a facility-based cross-sectional study

Background: Seeking healthcare in children is unique since parents decide upon the type and frequency of healthcare services accessed. Mothers/caregivers lower healthcare seeking behavior is one of the major reason for increased morbidity and mortality from childhood illness in developing countries.

Mon, 12/12/2022 - 13:49

What do family caregivers do when managing medications for their children with medical complexity?

Using a work domain analysis and complementary thematic analysis, this paper aims to describe medication management work, its constraints, and complexities from the perspectives of family caregivers of children with medical complexity-a medically fragile segment of the pediatric population often dependent on multiple and complex medication regimens for survival and optimal functioning.

Mon, 12/12/2022 - 13:24

Being in control and striving for normalisation: A Norwegian pilot study on parents’ perceptions of hospital‐at‐home

In recent decades, there has been a shift from hospitalisation to home care throughout the Western world, even for children. Hospital‐at‐home for children is in a developmental phase and represents a new service model in Norway. The aim of this pilot study conducted in a Norwegian healthcare setting was to explore how parents with a sick child experienced early hospital discharge and further care at home. The qualitative data are drawn from nine interviews with parents with a child admitted to hospital‐at‐home.

Mon, 12/12/2022 - 13:04

Assisted Living Transitions: Experiences of Family Members of Older African American Women

Background: Long-term care, also known as aging services, is evolving to meet the needs of the aging population in the United States, which is increasingly ethnically and racially diverse. The objective of this qualitative multiple case study was to understand how immediate family members experienced the transition of older African American women as they moved into assisted living facilities. Design: Black feminist theory provided a theoretical framework.

Wed, 01/12/2022 - 15:25

The Young Carers ID Card

Carers Trust Wales, in partnership with local authorities from across Wales, is supporting a new Welsh Government funded ID card scheme to help young carers in Wales to be identified, feel validated, and receive the support they deserve.

There's a helpful video linked to the page.

Sat, 03/20/2021 - 09:32

The Invisibility of a Family Caregiver

During the past five years, I have had the opportunity to meet and hear from many people who felt invisible. These individuals are among the 40 million family caregivers in the United States who are providing unpaid care to a parent, spouse, partner, friend or neighbor.

Tue, 10/01/2019 - 10:14

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